NFXF Webinar Series

Introductory Discussion on Estate Planning

00 h 58 m

An introductory discussion on preparing a plan for the future to preserve your legacy and ensure that your loved ones are well cared for.

About the Webinar

With Denny Haugen, Don Meyer, Missy Zolecki, and Hilary Rosselot
Learn more about the presenters

This one-hour Q&A session provides an introductory discussion on preparing a plan for the future to preserve your legacy and ensure that your loved ones are well cared for.

An estate consists of everything you own: car, home, financial accounts, life insurance, furniture, personal possessions, etc. No matter how large or modest, everyone has an estate. It is recommended that you review and update your estate plan as your family or financial circumstances change over your lifetime. Estate planning is an ongoing process, not a one-time event, and the time to start planning is now.

Estate Planning is for Everyone

Creating an estate plan to protect your family can bring peace of mind. Whether you are beginning the process or updating an existing plan, it is important to consider what your loved one would require to maintain their daily routine.

Identifying experienced professionals to assist with creating your plan can be overwhelming. Request recommendations from your family, friends, or professionals you trust for assistance with selecting members of your professional planning team.

Questions you may consider asking the professional:

  • How much of their practice and experience relates to federal and state specific laws, tax provisions, and estate planning for people with disabilities?
  • How much experience do they have in applying for public benefits? ABLE accounts?
  • What is their cost or fee structure?

It is important to remember that many aspects of the planning process do not require fees. Future planning is possible regardless of income. Public benefits and resources can vary state-by-state. The links below may help locate professionals and programs to assist with the planning.

Additional Resources

Planning for the future is important for all families. It is an ongoing process, and it is never too soon to begin to create a plan. We recommend reviewing these webinars:

The National Fragile X Foundation (NFXF) does not provide medical, financial, or legal advice or services. Rather, the NFXF provides general information about Fragile X as a service to the community. All information and content are for informational purposes only. They are not recommendations, referrals, or endorsements of any resource, therapeutic method, or service provider and do not replace the advice of medical, financial, legal, or educational professionals. The NFXF has not validated and is not responsible for any information, opinions, or services third parties provide. You are urged to use independent judgment and request references when considering any resource associated with providing services related to Fragile X.

About the Presenters

Denny Haugen

Denny Haugen

NFXF Board of Directors
Board Member

Denny and his wife, Marcia, are proud parents of Angela, 40, and Aaron, 38. Aaron was diagnosed with Fragile X syndrome when he was 10 years old, thanks to a very observant elementary school teacher. Aaron’s diagnosis was a real blessing as his education could have been a disaster! He had a wonderful functional education that helped him graduate from high school in Kansas City, Missouri.

After moving to Waverly, Iowa, in 2003, Aaron was able to live by himself with agency help and has a job in dining services at Wartburg College. Aaron also helps manage the Wartburg College football team, which is the true love of his life! There is a documentary “Not So Fragile” that shares much of Aaron’s journey.

“I am so excited to be a member of the board of directors for the NFXF! I’m hoping to learn and share a lot — both in experience as a parent of a Fragile X son and in wisdom gained from my fundraising career of 14 years. I look forward to continuing to learn more about Fragile X, especially in research for the full-mutation Fragile X adult!”

Missy Zolecki headshot

Missy Zolecki

National Fragile X Foundation
Director, Community Empowerment

Missy joined NFXF team in 2018 after being an active volunteer since 2010. Missy organized several fundraisers and educational workshops while serving in her volunteer role. Missy is the mother of three children. Her eldest son, Matt, lives with Fragile X syndrome. Prior to joining the NFXF team, Missy had worked as a nurse for more than 20 years. She enjoys traveling and spending time with family and friends.

Hilary Rosselot, Executive Director

Hilary Rosselot

National Fragile X Foundation
Executive Director

Hilary joined the NFXF team in 2019. Prior to joining the NFXF team, she worked at the Cincinnati Fragile X Research and Treatment Center for several years. She has experience as a clinical research coordinator across many types of clinical trials and served as the clinical research manager for the Cincinnati program. She earned a bachelor’s in psychology, an MBA, and was previously a SOCRA-certified clinical research professional (CCRP). She enjoys spending time with her family, including her young daughter and Boston Terrier, as well as curling up with a good book.

*We do not have biographical information on Don Meyer.