I’m a Male With Fragile X Syndrome and I Want to Tell You About Fragile X

One of the most important messages is that Fragile X is just one part of who a person is, and knowing what Fragile X is helps people get the support they need and deserve.

Do you know someone who could benefit from watching this video? Look for other videos like this on our YouTube channel and your favorite social media accounts.

Thank you to Self-Advocate Audric Newsome for narrating this video! Also see our similar video from a female perspective.

Transcript

Hi! I want to tell you about Fragile X. 

Everyone has an FMR1 gene. Mine works a little differently — I have Fragile X syndrome (FXS). 

That means I might learn, speak (or not speak), or move differently than you. Sometimes I get anxious or overwhelmed, especially in new or loud places. 

I might need more time to respond or prefer not to be touched. And sometimes, my behavior might surprise you. 

You can help by giving me space, keeping things calm, and showing me what’s happening next with words or pictures. Deep breaths help, too. 

People with FXS can be funny, kind, and have great memories. 

Just like you, I have things I’m good at — and things that are hard for me. 

Fragile X is only one part of who I am. 

Ask me about Fragile X! 

You can also learn more by visiting fragilex.org