I Want to Tell You About Fragile X

The NFXF is excited to share this one-minute animated video, from the perspective of a male Self-Advocate living with Fragile X syndrome. This video, designed with self-advocates in the Fragile X community, is meant to be a powerful tool to support self-advocates in explaining what they want others to know about Fragile X syndrome. One of the most important things they wanted was to encourage the viewer to ask them about Fragile X!

Thank you to Self-Advocate Audric Newsome for narrating this animated video!

Transcript

Hi! I want to tell you about Fragile X. 

Everyone has an FMR1 gene. Mine works a little differently — I have Fragile X syndrome (FXS). 

That means I might learn, speak (or not speak), or move differently than you. Sometimes I get anxious or overwhelmed, especially in new or loud places. 

I might need more time to respond or prefer not to be touched. And sometimes, my behavior might surprise you. 

You can help by giving me space, keeping things calm, and showing me what’s happening next with words or pictures. Deep breaths help, too. 

People with FXS can be funny, kind, and have great memories. 

Just like you, I have things I’m good at — and things that are hard for me. 

Fragile X is only one part of who I am. 

Ask me about Fragile X! 

You can also learn more by visiting fragilex.org