I Have Fragile X Syndrome

The NFXF is excited to share this one-minute animated video, from the perspective of a female Self-Advocate living with Fragile X, designed to raise awareness and educate about Fragile X and the Fragile X premutation! Look for other videos like this on YouTube and your favorite social media accounts.

Do you know someone who could benefit from watching this video?

One of the most important messages is that Fragile X is just one part of who a person is, and knowing what Fragile X is helps people get the support they need and deserve.

Thank you to Self-Advocate Chelsea Mumford for narrating this video!

Transcript

Hi! I want to tell you about Fragile X. 

Everyone has an FMR1 gene. Mine works a little differently — I have Fragile X syndrome (FXS). 

That means I might learn, speak (or not speak), or move differently than you. Sometimes I get anxious or overwhelmed, especially in new or loud places. 

I might need more time to respond or prefer not to be touched. And sometimes, my behavior might surprise you. 

You can help by giving me space, keeping things calm, and showing me what’s happening next with words or pictures. Deep breaths help, too. 

People with FXS can be funny, kind, and have great memories. 

Just like you, I have things I’m good at — and things that are hard for me. 

Fragile X is only one part of who I am. 

Ask me about Fragile X! 

You can also learn more by visiting fragilex.org