Video
Fragile X Caregiver Stories: Rene
June 26, 2025
00 h 02 m
Rene shares his story about his son’s diagnosis of Fragile X syndrome and about his hope for the future.
About the Video
With Rene
Alongside Shionogi, we spotlight caregivers and their unique experiences for #FragileXAwarenessMonth. Rene had never heard of #FragileXSyndrome before his son’s diagnosis. In the years since, Rene and his family have learned so much from National Fragile X Foundation and found a true home within the community.