Video

Fragile X Caregiver Stories: Jessie

00 h 02 m

Jessie, mother of 5 with #FragileXSyndrome, shares her experience and what she hopes the future of care looks like.

About the Video

With Jessie

Alongside Shionogi, we spotlight caregivers and their unique experiences for #FragileXAwarenessMonth. Jessie, mom of five children with #FragileXSyndrome (FXS) shares why it’s important for families to have access to healthcare professionals with FXS experience as well as resources and services including those provided by the National Fragile X Foundation.