Age-by-Age Recommendations For You and Your Loved One With FXS
From childhood through adulthood, transitioning can be an overwhelming task for parents and caregivers and, most importantly, for your loved one with Fragile X syndrome. We’re here to help!
This checklist includes age-by-age checklists to ensure everything is covered for both the individual and their parents and caregivers. Having said that, this checklist is not conclusive — transition planning is largely based on the state you live in and the level of support they might provide. It is also important to plan the transition based on the specific wants and needs of the individual with FXS — what works for one person may not work for another.
We curated this collection from our own resources, resources from the Community Support Network, and resources from our friends at the Angelman Syndrome Foundation. We have found that so many organizations have great resources for families navigating adulthood, and we are proud to partner with them to offer you great and useful content!
As with all of our digital resources, this is provided free of charge. The ability to pay shouldn’t stand in the way of giving help and hope to those living with Fragile X.


What makes Aaron Xtraordinary to you?
Aaron loves life and people, forming meaningful relationships effortlessly. He naturally sees the good in everyone he meets, without even realizing it.
