About the Study
- Learn who can participate, what will happen in the study, and the good and bad things that could happen from this research.
- Once youʼve read through the information and youʼre interested in participating, please see our submission information.
Who can participate?
Girls living with Fragile X syndrome or autism spectrum disorder, ages 8-12, may participate in this study.
What will happen in the study?
If the individual qualifies and decides to be in this research study, they will come out to one of the research sites for two visits over two years.
The following is a list of some of the activities that will happen during the study:
- Your daughter will take part in activities looking at cognition, language, and other skills.
- Caregivers are asked to participate in interviews and answer questionnaires about their daughter.
What are the good things that can happen from this research?
Caregivers will receive a report after completing the study, including their daughter’s assessment results and general observations.
This study will help researchers learn more about how language and executive function affect academic and life skills in autistic girls or girls with FXS.
What are the bad things that can happen from this research?
Participants may become anxious or tired when asked study questions or when completing study tasks.
There may be other risks that we do not know about yet.
Will participants be paid to complete this study?
Participants receive up to $225 for completing the study.
Travel-related expenses, including mileage, flights, hotel stays, and meal reimbursements, can be reimbursed depending on project resources and university policy. Please contact the site coordinator for more information.
Interested in Participating?
Here’s what to do and who to contact:
Complete this interest form, or contact:
Waisman Center, University of Wisconsin-Madison
Susen Schroeder
608-263-5145
sschroeder@waisman.wisc.edu
MIND Institute, University of California Davis
Vivian Nguyen
916-703-0226
vivng@ucdavis.edu