About the Study
Who can participate?
Legal guardians of at least one child aged 0-5 years currently receiving speech-language interventions delivered by a speech-language pathologist in the United States may be eligible to participate.
What will happen in the study?
If the individual qualifies and decides to be in this research study, they will complete the survey online. The survey should take about 30 minutes to complete. The survey may not be completed in more than one sitting.
What are the good things that can happen from this research?
Data collected from the survey will be used to inform future language intervention research for children with FXS and their families that takes into account family perspectives. Upon survey completion, you may opt into a raffle drawing.
What are the bad things that can happen from this research?
This study poses minimal risks. However, as with any study, confidentiality risks exist when collecting data. To reduce confidentiality risks, please do not include your name or other information that could be used to identify you in your survey responses.
There may be other risks that we do not know about yet.
Will I or my child be paid to complete this study?
Upon survey completion, you may opt into a raffle drawing.