NFXF International Fragile X Conference

The NFXF International Fragile X Conference is the premier biennial event for the Fragile X community, bringing together individuals, families, and professionals to learn, celebrate, and empower one another.  

This unique experience is not only educational but also empowering. Sessions will focus on strategies and techniques for supporting individuals living with Fragile X, as well as providing access to emerging research and opportunities.  

This conference brings together the entire Fragile X community. Families, self-advocates, siblings, clinicians, educators, and researchers will attend.

Attending the conference in person offers a powerful opportunity to connect, learn, and engage with members of the Fragile X community who truly understand the journey. You will have the chance to build relationships with other families, self-advocates, clinicians, educators, and professionals in a collaborative and engaging environment where shared experiences and expertise come together.

Being together in person allows for conversations, real-time learning, and connections that often extend well beyond the conference itself. From interactive sessions and informal discussions to networking, the in-person experience fosters collaboration, inspiration, and a strong sense of belonging that is difficult to replicate virtually.

Yes! We will have a virtual option available. The individual cost will be $199 and includes virtual access for one (1) individual to recorded content via the conference app, Whova. Recordings of onsite breakout sessions and prerecorded poster sessions will be available within two weeks after the event via the conference app and will be available for viewing until October 12, 2026. There will not be any opportunity to interact with presenters for recorded sessions.

Yes. We will be opening the scholarship application in February 2026. Scholarships are made available to assist individuals (parents, self-advocates, siblings, caregivers, and family members) who have not previously attended an NFXF International Fragile X Conference or who might not otherwise be able to attend due to limited financial resources. Depending on the availability of funding, limited scholarships may be available for early-career professionals and/or full-time students who are working in or pursuing a career in the Fragile X field.

Due to low utilization in past years, childcare will not be available this year. We have decided to redirect those resources to enhance programs and services that benefit all conference participants. We appreciate your understanding and remain committed to providing a welcoming and supportive experience for everyone attending the conference.

We will have heavy appetizers on Thursday and Friday evening. We will have a full meal at the Saturday evening celebration (Ticket to the Saturday evening celebration is included with the individual registration, and additional add-on tickets will be available for purchase for non-conference attendees). You are responsible for all other meals; there are a few options within the hotel itself, and several options within close walking distance. Water stations are throughout the hotel and in all meeting rooms.