Tracy Stackhouse discusses the importance of self-regulation in individuals with Fragile X syndrome, including tools, safety, and connection.
This family-friendly introductory session unpacks the complexities of assistive technology from early childhood to special education IEPs through to adulthood. Families will learn about no-to-high-tech assistive technology with examples and how it works.
The return after a long break can be a difficult transition for anyone, especially an individual living with FXS. With thoughtful planning and a compassionate approach, the entire support team can help ease the process.
Use our customizable “About Me” template to help describe Fragile X to your schoolmates or colleagues.
Author Jayne Dixon Weber decided to make some changes after a couple of years of meetings with teachers, psychologists, and administrators, during which she was handed a “draft” IEP when she walked in the door. This is her IEP story.
Creating an IEP — individualized education program — can be an incredibly confusing and daunting experience. The “alphabet soup” of acronyms and legalese can increase the anxiety and uneasiness for families. This is our list to help families navigate the confusion.
A wealth of practical information that includes background on FXS, descriptions of behavior and learning styles, discussion of educational and community resources, and sample lesson plans for children with FXS at a variety of developmental levels.
Students with Fragile X syndrome are prone to hyperarousal and anxiety. It’s how their nervous systems are wired. The most effective way to help your student get the most from their time at school is to minimize the likelihood of hyperarousal and anxiety and maximize their focus and cooperation.
Anne Hoffmann and Kristen Vincent present tools that caregivers can use to encourage communication development for children during their early stages of development.
The Q&A discussion included panelists with expertise and suggestions to support individuals living with Fragile X throughout their lifespan.
In this presentation, participants learn why visual supports are an essential facet of home, school, and therapy.
This family friendly session (co-presented by occupational and speech therapy) will unpack the complexities of Assistive Technology (AT) from early childhood to schools / IEPs and through adulthood.
Learn how inclusive early childhood settings benefit children with FXS. Explore guidelines, resources, and best practices to support families and professionals.
This presentation focuses on tools that caregivers can use to encourage communication development for individuals at early stages of development.
This interactive, family-friendly presentation focuses on considerations for school-age children with Fragile X syndrome.
Dr. Marcia Braden presents a webinar about females and Fragile X syndrome to help you better understand the features associated with the syndrome.
Our expert panel discusses the issues around caring for young children with Fragile X syndrome, including speech development, integrating with their typical siblings, occupational therapy, behavioral issues, and much much more.
Early Check screening for Fragile X will give researchers important information about how Fragile X affects infants and toddlers before any signs or symptoms are noticed by parents or doctors. It provides very early developmental assessments and intervention. It will also help prove whether early diagnosis and intervention have long-term benefits for children with Fragile X syndrome.
These findings provide preliminary information about the early language learning environment and support for the feasibility of utilizing an automated vocal analysis system within the FXS population that could ease data collection and further our understanding of the emergence of language development.
This list is by no means exhaustive, but is based on important information the Morgridge College students discovered when researching adult services for those with Fragile X syndrome.
Before embarking on a vocational setting, we have some suggestions to make these transitions into the workplace during the high school years more valuable and comfortable for everybody.
Video modeling utilizes readily available technology to provide a model of appropriate social, language, behavior, or specific targeted daily living or job skills.
We use a variety of visually-based supports with individuals with FXS for a number of reasons, including that they are visual learners, and we need to take advantage of this strength.
The specific phenotype of Fragile X syndrome results in a particular way of thinking, what we call the Fragile X learning style.
An assortment of sensory-, routine-, and language-based daily life strategies from the experts at Developmental FX, drawn from evidence-based practice and knowledge of the neurocognitive development of children with FXS.