We have gathered information to help you make the most of your online telehealth visit for your child (of any age) with Fragile X syndrome. While we focus on visits with a Fragile X clinic, the information also applies to telehealth appointments with a primary care doctor or other health professionals.
The webinar was a facilitated one-hour Q&A session covering a wide-range of topics. The panelists shared recommendations and information during the discussion, each from their own professional perspectives.
Emily Allen discusses some of the health concerns of women who are FMR1 premutation carriers.
Practical tips from doctors working directly with children and teens with Fragile X syndrome, with an emphasis on being prepared for FXS -and behavioral-specific questions.
As part of the NFXF’s ever-increasing focus on services for adults, we are pleased to bring you this 30-minute slide and audio presentation by Dr. Marcia Braden, titled, “Moving from Pediatrics to Adult Care.”
Clinicians from the Fragile X Clinical and Research Consortium, working with Dr. Sharon Kidd, former FXCRC national coordinator, determined the most common medical problems found in individuals with FXS.