Barbara Haas-Givler, from the Geisinger Fragile X clinic in Pennsylvania, gave a talk at the 18th NFXF International Fragile X Conference about executive functioning — what it is, how to identify it, and strategies for improving it.
The multidisciplinary panel discussed the unique experiences and support needs of females living with Fragile X syndrome. While females may sometimes exhibit fewer overt support needs, they can be as significantly affected as males. This complexity highlights the necessity for individualized approaches to support and intervention.
Dr. Hessl discusses the details of a longitudinal study that examined executive functioning changes in men living with the FMR1 premutation. He describes how the study was conducted, what the results showed, why they are important, what they mean for the FX community, and the next steps to move us forward.
Research Summary: This research was very revealing. Currently, we do not have accurate methods to predict who will develop FXTAS and who will not, or when the disease will start.
Speaker Barbara Haas-Givler provides resources and strategies for implementing social skills support in the classroom, home, and community.
Dr. Marcia Braden presents a webinar about females and Fragile X syndrome to help you better understand the features associated with the syndrome.
Though males experience greater frequency and severity of symptoms, females with FXS present a variety of challenges as well. This article is dedicated to addressing those challenges.