Share your story! Who is an Xtraordinary Individual in your life? It could be a teacher, sibling, or someone living with Fragile X. We share these stories on social media to inspire the community and help raise awareness for Fragile X. There are Xtraordinary Individuals everywhere.
He’s one of the most amazing little boys. With the help of his school, he has come such a long way. Even though heʼs nonverbal, you know exactly what he’s trying to say. He is so goofy and tries to be sneaky.
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He’s the sweetest little boy. He faces a lot of medical issues. He has come so far. He talks more and more every day, tries to interact with other kids, and is starting to be more independent. I couldn’t be prouder of this little guy.
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Jami is an easy going guy, who loves to talk to everyone he sees. He also has a strong faith in God, he loves Jesus, and he prays everyday. His favorite color is purple, favorite food is pizza. Loves watching sports, and westerns on TV, going to camp, and he also likes to sing with a microphone. He has a wonderful smile that lights up my heart.
Zachary loves like no other. His smile and hugs can turn a bad day good. He amazes me each and every day with the things he can do.
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Joseph is a very loving and happy boy! He’s never sad, always smiling! Joseph faces some challenges, like not walking by himself, but we work with him every day. He doesn’t let that stop him from getting from one place to another!
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Preston is truly one of the kindest souls you’ll ever meet. He’s the type of kid who would give up all his favorite things just to see someone else smile. He has a heart of gold and a natural gift for bringing joy to others. Whether he’s organizing, tidying up, or simply being himself, Preston has a way of turning even the gloomiest day around. His kindness and light are simply unforgettable.
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Lailah is one of the strongest and most resilient girls I’ve ever known. She’s fierce, full of sass, and never afraid to speak her mind or go after what she wants. But beneath that bold spirit is a heart full of love and kindness. She shares a beautiful bond with her best friend and brother, Preston. Lailah is incredibly bright, with a vocabulary that constantly amazes everyone around her. She has faced and overcome so many challenges with grace and determination, and continues to inspire us all.
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Caragan is xtraordinary to me because she is the most outgoing, brave, strong, and loving young lady. She was quite popular in school, and everyone in our community knows and loves her. Although she has a full mutation, she’s a true inspiration to many!
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NFXF has helped to educate me on all things Fragile X syndrome and bring important awareness as well. I appreciate them advocating for Fragile X.
He loves all sports — especially basketball & baseball. Loves Special Olympics & all his friends & coaches. Loves being an uncle to his niece and nephew.
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Max is easygoing, fun, and always ready for what each day holds. He is resilient and strong and doesn’t let anything get in his way.
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Max is transitioning into adulthood, and I have looked to this site many times for “what to do” or “what comes next.” It’s like finding a group that speaks my language and answers my questions. It’s like finding familiarity in families just like ours, parents and professionals alike.
