Share your story! Who is an Xtraordinary Individual in your life? It could be a teacher, sibling, or someone living with Fragile X. We share these stories on social media to inspire the community and help raise awareness for Fragile X. There are Xtraordinary Individuals everywhere.
They have the most fabulous lives, amazing sense of humour and are also both so sociable and funny and caring!
Special Facts:
We can share our experiences with other families with pride, and therefore, we are not alone in our challenges or in our victories.
John is an amazing son and brother to his four other siblings. His empathy and love for his family are unique. We love watching him grow and develop.
Special Facts:
Reading ongoing studies and seeing other families. I hope to go to a function of Fragile X. We need to support each other.
Carlyn is an overcomer. She’s the hardest worker I know and (*almost*) never complains. She’s funny, kind, compassionate, and loves her people. When she knows I’ve had a hard day, she texts me to check in. Everyone should have someone like Carlyn in their life.
Special Facts
NFXF has helped connect Carlyn with research opportunities and specialty care. We are so grateful for the organization and the support they provide the Fragile X community.
Davis is the light of our lives! He always makes us smile! He loves to sing on microphones and play with inflatables. He keeps us laughing and is always sweet, kind, and caring.
Special Facts:
You all have helped us stay connected with the latest updates to FX medicine and given us a community to be a part of.
He’s one of the most amazing little boys. With the help of his school, he has come such a long way. Even though heʼs nonverbal, you know exactly what he’s trying to say. He is so goofy and tries to be sneaky.
Special Facts:
He’s the sweetest little boy. He faces a lot of medical issues. He has come so far. He talks more and more every day, tries to interact with other kids, and is starting to be more independent. I couldn’t be prouder of this little guy.
Special Facts:
Jami is an easy going guy, who loves to talk to everyone he sees. He also has a strong faith in God, he loves Jesus, and he prays everyday. His favorite color is purple, favorite food is pizza. Loves watching sports, and westerns on TV, going to camp, and he also likes to sing with a microphone. He has a wonderful smile that lights up my heart.
Zachary loves like no other. His smile and hugs can turn a bad day good. He amazes me each and every day with the things he can do.
Special Facts:
Joseph is a very loving and happy boy! He’s never sad, always smiling! Joseph faces some challenges, like not walking by himself, but we work with him every day. He doesn’t let that stop him from getting from one place to another!
Special Facts:
Preston is truly one of the kindest souls you’ll ever meet. He’s the type of kid who would give up all his favorite things just to see someone else smile. He has a heart of gold and a natural gift for bringing joy to others. Whether he’s organizing, tidying up, or simply being himself, Preston has a way of turning even the gloomiest day around. His kindness and light are simply unforgettable.
Special Facts:
