Get Involved
Get involved with the Fragile X community through our various events, learn more about advocacy, and explore more ways to give.
The Fragile X Community
Xtraordinary Individuals
We asked, “Who is an Xtraordinary Individual in your life?” and continue to receive wonderful faces and stories of individuals living with Fragile X, their teachers, siblings, parents, friends, doctors, and more.
Community Support Network
Community is built into everything we do. Knowing there are others impacted by Fragile X and sharing your challenges and triumphs is incredibly empowering. Find an NFXF chapter, community partner, or community contact.
Donate
Donate to the NFXF
Make a real difference in the lives of ALL those impacted by Fragile X by empowering the Fragile X community with knowledge, resources, tools, and hope!
Meet Our Donors
Meet dedicated and inspiring community members committed to ensuring the NFXF is here to provide unwavering support to all Fragile X families.
Ways to Give
The most common way to give is by donating online, and here you’ll find many more ways to give. We’re here to help with your planning.
Advocacy
Advocacy Programs
We actively advocate in Congress for Fragile X research funding and policies that facilitate treatment development and create opportunities for individuals with intellectual and developmental disabilities.
NFXF Advocacy Day
Every spring, families, self-advocates, caregivers, siblings, doctors, and researchers tell their stories and educate Congress on the practical ways they can help make a difference.
Events
Fragile X Awareness Month
During National Fragile X Awareness Month our combined voices amplify the message far and wide.
X Strides
X Strides is a family-friendly, fun way to raise awareness and support advocacy, education, research, and treatment for FXS.
NFXF International Fragile X Conference
The NFXF International Fragile X Conference is the premier international educational event for the Fragile X community.
Events Calendar
Register for one of our popular webinars, find community and chapter events and fundraisers, plus other learning and advocacy opportunities.