Nicholas Hertzig

What makes Nicholas Xtraordinary to you?

Nicholas is 31 years old and assists me every time his grandfather’s aide is on vacation, usually two weeks at a time. This is no easy task as my husband Jack, Nick’s grandfather, has FXTAS, and is totally dependent on others in every aspect of daily life. Nicholas has learned to operate the hoyer lift to move Jack from the bed to a wheelchair or a recliner and vise versa back to bed. Additionally, he assists in bathing, changing and dressing his grandfather. Nick prepares breakfast and feeds his grandfather. Monitoring the daily medications, keeping track of when his sugar level should be checked and helping with chores of garbage disposal, monitoring supplies and laundry are activities that Nick does without being asked. He does all of these things while working part time in a hospital. Because of Nick and his parents and sister driving him to and fro we are able to give my husband the best possible care. Nick is our heavenly gift. No one fills his shoes.

Special Facts

Nick is easygoing, putting others first. Even when he himself is tired performing caregiving and working at the hospital, he complains little. He wants his grandfather to be comfortable and will do anything for him.

How has the NFXF helped you and/or your family?

NFXF has provided invaluable information on living with FragileX and FXTAS.