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Events

North Carolina Fragile X Foundation Family & Friends Picnic

Lake Macintosh Park 2704 Huffman Mill Road, Burlington, NC, United States

Join us for a day to reunite with our NC Fragile X community! The North Carolina Fragile X Foundation Board is pleased to host our annual Family & Friends Picnic. We look forward to seeing familiar and new faces! Please share this invitation with friends, family, or community members who want to join in on […]

Free

Cincinnati Fragile X Research and Treatment Center 4th Annual Family Picnic

Weston Shelter at Woodland Mound 8250 Old Kellogg Rd., Cincinnati, OH, United States

Join the Cincinnati Fragile X Research and Treatment Center for our 4th Annual Family Picnic! We will be hosting family, friends, and staff for our clinic. We will have games and enjoy the outdoors! Food will be provided (and ice cream!). The event will be held at the Weston Shelter (covered event space) in the […]

The Improvaneer Method Zoom Class for Self-Advocates!

Zoom
Virtual Event

The Improvaneer Method is back again to create a positive learning atmosphere that incorporates fun, humor, and discipline into this interactive class for self-advocates.

Free

2025 Industry Updates Webinar

Zoom
Virtual Event

Join us for our annual Industry Updates webinar. Representatives from Shionogi, Harmony Biosciences, Mirum Pharma, Kaerus Bioscience, and Servier Pharmaceuticals will share the latest on their Fragile X research and development efforts. Each organization will provide a brief update, followed by a moderated Q&A session. Don’t miss this opportunity to hear directly from our industry […]

Free

Advocacy Day 2026

Washington, DC DC, United States

Save the date! Additional information will be added as it becomes available.

The 2026 20th NFXF International Fragile X Conference

Louisville Marriot Downtown 280 W. Jefferson St., Louisville, KY, United States

Save the date! Additional information will be added as it becomes available. Also see the NFXF International Fragile X Conference main page.

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