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Events

  • North Carolina Fragile X Foundation Family & Friends Picnic

    Lake Macintosh Park 2704 Huffman Mill Road, Burlington, NC, United States

    Join us for a day to reunite with our NC Fragile X community! The North Carolina Fragile X Foundation Board is pleased to host our annual Family & Friends Picnic. […]

    Free
  • 2025 Industry Updates Webinar

    Zoom

    Join us for our annual Industry Updates webinar. Representatives from Shionogi, Mirum Pharma, Kaerus Bioscience, and Servier Pharmaceuticals will share the latest on their Fragile X research and development efforts. […]

    Free
  • Family Event! Community Tree Trim at Brookfield Zoo

    Brookfield Zoo 8400 31st St., Brookfield, IL, United States

    Hi Greater Chicago families! Let’s have a family day at the zoo. Sunday, November 9, is the start of the 44th annual Holiday Magic at Brookfield Zoo. We have purchased […]

  • Mirum FXS Clinical Trial: Q&A with Dr. Gary Feldman

    Dr. Gary Feldman We are excited to announce that the Mirum clinical trial for Fragile X Syndrome (FXS) is now enrolling in Irvine, California, under the leadership of Dr. Gary […]

  • FX Dadʼs Chat

    There are nine dates between October 2025 and June 2026 in this monthly Zoom get-together for dads, hosted by the NFXF Connecticut Chapter. You do not need to be a […]

  • Advocacy Day 2026

    Washington, DC DC, United States

    Save the date! Additional information will be added as it becomes available. Learn more about Advocacy Day.

  • The 2026 20th NFXF International Fragile X Conference

    Louisville Marriot Downtown 280 W. Jefferson St., Louisville, KY, United States

    Save the date! Additional information will be added as it becomes available. Also see the NFXF International Fragile X Conference main page.

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