This panel considers the perspectives of siblings of individuals with Fragile X syndrome.
Calling all fathers, papas, daddies, pop, and dads—Will Bridges discusses raising a child or children with Fragile X syndrome. Not sure how to explain Fragile X syndrome to a colleague? We’ve got you covered. Do you find yourself frustrated at home? We all do, and we have some ideas that may help.
Many families struggle with deciding when the “right” time is and what to say. Here are some strategies to help in having a conversation with your daughter about her Fragile X syndrome diagnosis.
Family discussions about the many aspects of Fragile X cannot be boiled down to a single talk. Families do best when there is open and honest communication about Fragile X and we have some tips to help.
