NFXF Blog

Joey Christoff and his family host this multi-day fishing competition at their Hilton Head, South Carolina, home, turning a world-renowned vacation destination into a fundraising powerhouse.

Meet Jill and her family, whose multi-generational Fragile X story highlights the importance of research, testing, and hope. Learn how new FXTAS clinical trial readiness efforts are paving the way for future treatments.

Mirum Pharmaceuticals has officially enrolled the first participant in its BLOOM Phase 2 clinical study evaluating MRM-3379, a potential new treatment for Fragile X syndrome (FXS).

The holiday season can feel more like survival mode. Changes in routine, packed social calendars, and lack of sleep create unique challenges for individuals with Fragile X syndrome.

Jay and Anne Souder have done it again with their annual golf event and fundraiser, “FORE! Fragile X,” and we have the pictures!

Learn how you can help us educate more clinicians about the Fragile X premutation, with a special emphasis on raising awareness for FXPOI, in 2026.

Meet Will, who lives with Fragile X syndrome and participates in research studies. Learn how your gift on Giving Tuesday will help grow the future of Fragile X research.

This research looks at how a child’s level of intellectual disability (ID) — meaning how much their thinking and learning abilities are affected — relates to the types of behavioral challenges they experience if they have Fragile X syndrome (FXS).

CONNECTA Therapeutics is taking a new approach to Fragile X syndrome treatment by boosting the brain’s natural ability to reconnect and adapt.