The National Fragile X Foundation has been advocating for research funding and for laws and regulations sensitive to the needs of the Fragile X community, for more than 25 years.
Ensure continued protection for all students, especially members of the Fragile X community.
Reach out to your Members of Congress and stress the critical importance of continued federal support, including NIH funding for Fragile X research.
NFXF Executive Director Hilary Rosselot and Advocacy Ambassador to the NFXF Board of Directors Dillon Kelley attended the CEO Commission for Disability Employment’s Employment Summit and Hill Day in September. It was an inspiring, action-packed few days, and they are excited to share more about their experience and why it matters to the Fragile X community with you.
NFXF board member Jed Seifert represented the NFXF at the CEO Commission’s Hill Day and shared his reflections on this powerful experience.
Red tape should never stand between a child and their treatment. But sometimes, they face burdensome, unnecessary challenges when getting care in another state.
NFXF Advocates head to Capitol Hill to ask for ongoing federal funding for Fragile X research and legislation to support telemedicine.
Gregg Harper, Fragile X dad to Livingston and a former five-term congressman, gave an inspirational keynote speech to kick off the first two days of the conference.