Shawna, Tara & Samantha

What makes Shawna, Tara & Samantha Xtraordinary to you?

When these ladies learned they were carriers they began the journey to learn everything they could about FX. Titles they have: board member on a committee for crippled children and adults, school nurse, audiologist, attendees to several in-person advocates in Washington, D.C. ALL three have taken their children to various studies to be a part in researching FX and ways to help children with FX. They continue to be there for anyone needing information on FX. They are my heroes!