Kolt Walters, Oaklynn Long & Adan Long

What makes Kolt, Oaklynn & Adan Xtraordinary to you?

My name is Haleigh Long and I am a carrier of Fragile X Syndrome. I have 3 AMAZING children ages 5, 3, and 1. They have overcome so many obstacles and continue to do so. Adan (5) is diagnosed with Fragile x, autism, and Klinefelter. Oaklynn (3) is diagnosed with Fragile x and autism. Kolt (1) is diagnosed with Fragile X and awaiting autism diagnosis now. They all enjoy going to the park, reading books, and milkshakes. They have such a positive impact on everyone they meet. “I thought I would have to teach my children about the world. It turns out I have to teach the world about my child.” —Unknown

I enjoy educating others about Fragile x syndrome and am an advocate for my children. They are so Xtraordinary to me.