https://youtu.be/VPzWQCm0kJ0 In this presentation, Dr Craig Erickson ( and Chair, FXCRC Clinical Trials Committee) discusses the mechanism of action of trofinetide (NNZ-2566, Neuren Pharmaceuticals) and its potential suitability as a treatment for Fragile [...]
Fragile X got some mainstream exposure on Friday’s episode of General Hospital. One of the main characters, Samantha McCall, talks with her estranged adoptive dad. Trying to reconnect with his daughter, Samantha's Dad mentions that [...]
Yes, that's correct Fragile X syndrome was mentioned when Mike asked for "Fragile for $400" on Thursday nights episode of Jeopardy. http://youtu.be/Ujr5jhZgzvY
We recently asked our friends in the Fragile X community what they are thankful for. Their answers touched us and reminded us that, indeed, our Fragile X families are the most thankful of all! The [...]
Starring Our Xtra Special Dads http://youtu.be/GFL-u6hjSfE June 17, 2012 is Father’s Day and we celebrate the amazing Fragile X dads with an NFXF video tribute created by Fragile X parents Eric Welin, Holly Usrey-Roos and [...]
We recently asked our friends in the Fragile X community what they are thankful for. Their answered touched us and reminded us that, indeed, our Fragile X families are the most thankful of all.
