31 Shareable Fragile X Facts

Why 31? Because there are 31 days in July, and every July is National Fragile X Awareness Month! So you’ll always find at least 31 facts right here (plus plenty of bonus facts), that you can read or watch + listen from Fragile X community members including moms, dads, siblings, self-advocates, researchers, genetic specialists, staff, and more. Take a listen!

Fragile X Fact #21

The sibling relationship can be one of the closest and most enduring relationships in a person’s life, leading to countless rewards, support, and growth. My brother has made me more into the man I am today than anything I could do for him.

FRAGILE X SIBLINGS

Fragile X Fact #22

If you want to have a conversation, try it while going for a walk, jumping on the trampoline, or while swinging at the park.

MY CHILD WONʼT ANSWER QUESTIONS!

Fragile X Fact #23

The transition from adolescence to adulthood can be challenging for many as the services under IDEA come to an end. Reach out to your local Arc and disability groups to find the services available in your area.

ADULTS WITH FXS EBOOK

Fragile X Fact #24

Fragile X-associated tremor/ataxia syndrome, or FXTAS, causes “Parkinsonian like” symptoms and it occurs more commonly in male premutation carriers than females.

TREMOR/ATAXIA SYNDROME

Fragile X Fact #25

Female premutation carriers have a 50/50 chance with each pregnancy of passing the Fragile X gene mutation to each of their children.

PREMUTATION CARRIERS

Fragile X Fact #26

Fragile X-associated tremor/ataxia syndrome is often initially misdiagnosed as Parkinson’s, Alzheimer’s, or a stroke.

TREMOR/ATAXIA SYNDROME

Fragile X Fact #27

Fragile X premutation carriers may be at a higher risk for high blood pressure, depression, anxiety, hypothyroidism, chronic pain, and sleep apnea.

PREMUTATION CARRIERS

Fragile X Fact #28

Children with Fragile X syndrome have a simultaneous cognitive style. This means that they are “gestalt” learners who need to see and understand the “whole” and not the parts that add to a whole. They are keen observers who learn from seeing a whole process or skill that they can replicate through imitation.

ADAPTING AUTISM INTERVENTIONS
AUTISM INTERVENTIONS

Fragile X Fact #29

Calming routines — taking deep breaths, counting to 5 or 10, listening to a calming song, looking at a favorite picture or book, or pouring beans or rice — can be practiced in a nonstressful time and used to bring greater calmness during points of increasing anxiety.

MANAGING ANXIETY

Fragile X Fact #30

If you have the premutation there are steps that you can take to stay healthy, including exercise and an active lifestyle.

PREMUTATION INVOLVEMENT IN WOMEN
Father, mother, and daughter

Fragile X Fact #31

If you have a new Fragile X diagnosis in your family, you’re not alone — our friendly and responsive staff are here for you.

VISIT NEWLY DIAGNOSED
FACTS 1–10
FACTS 11–20
FACTS 21–31
BONUS FACTS