Tag: Treatment and Intervention

Building Social Supports: A Guide for Parents

Quality Friendship

Individuals with FXS often have difficulty establishing meaningful friendships. Limited social skills, social anxiety and an often narrow range of interests contribute to these difficulties. Various interventions can increase the social network of those with FXS. The following ideas are provided to help such individuals and their families. Building Early Social Skills Parents are in



Zynerba Pharmaceuticals Announces Oral Presentation of ZYN002 Data at the 16th NFXF International Fragile X Conference in July 2018

by NFXF

PRESS RELEASE FROM ZYNERBA PHARMACEUTICALS Devon, PA, , April 23, 2018 — Zynerba Pharmaceuticals, Inc. (NASDAQ:ZYNE), a clinical-stage specialty neuropsychiatric pharmaceutical company dedicated to developing and commercializing innovative pharmaceutically-produced transdermal cannabinoid treatments for rare and near-rare neurological and psychiatric disorders with high unmet medical needs, today announced an oral presentation to be given at the16th NFXF (National Fragile



Webinar: Autism Spectrum Disorder in Fragile X Syndrome

ASD in FXS; Co-Occurring Conditions and Current Treatment Featuring Special Guest Walter E. Kaufmann, MD, Greenwood Genetic Center, Boston Children’s Hospital Description Numerous small and parent reported studies have shown that a considerable percentage of individuals with FXS also carry a diagnosis of autism spectrum disorder (ASD). Individuals with a dual diagnosis of FXS and



Planning Your Visit to a Fragile X Clinic

Why should you visit a Fragile X clinic? Because you won’t hear, “Fragile what?” You will have the opportunity to meet with a team of people who will be able to provide guidance in many areas of raising your child or children. Just as importantly, once you establish a relationship with the Fragile X doctor,



Home Schooling and Fragile X

Whether you have decided to home school your child for a year or for an extended period, developing a curriculum can be a challenge. Start by setting goals for your child, research and experiment with ways your child learns, review various curriculums, and put together a program for your child. Here are websites to get



Early Intervention for Infants and Toddlers with Fragile X Syndrome

The Early Intervention Process The Early Intervention Program for Infants and Toddlers with Disabilities is the program known as Part C of the Individuals with Disabilities Education Act (IDEA). It is also known as Child Find. Part C is a federal grant program that encourages states to set up programs for young children with disabilities



Lesson Planning Guide

Download the Guide A Practical Approach for the Classroom This guide is intended for classroom teachers who may have little or no exposure to Fragile X syndrome (FXS). Our goal is to help make the teaching and learning environment from preschool through high school more effective, more efficient, and more rewarding for teachers and the

Insight on Evidence-based Medical and Therapeutic Intervention

by NFXF

A discussion for parents of children with special developmental needs about evidence, consensus and anecdotal-based interventions. After more than four decades of working with parents of children with special developmental needs, I’ve learned that they often find it difficult to know what the best approaches or interventions are to help their children. Conflicting statements, recommendations



Is Your Child’s Behavior a Manifestation of His Disability?

by NFXF

I have consulted on several cases related to students with FXS being suspended from school because their behavior was believed to be threatening or dangerous to others. The students were suspended until a “manifestation hearing” could be held. Such hearings are required by the Individuals With Disabilities Education Act (IDEA), allowing for further investigation to



Dr. Craig Erickson Discusses the Drug Acamprosate for the Treatment of FXS

by NFXF

Acamprosate, a drug used to treat alcohol abuse, improves communication and social behaviors associated with a common form of autism. IU autism researcher Craig Erickson, MD, will discuss his ongoing study of acamprosate and Fragile X syndrome, the most frequent, single genetic cause of autism. Listen or download podcast Dr. Erickson is assistant professor of