Toilet training can be a difficult and challenging experience for children and parents alike, and the challenges can be magnified for families of children with Fragile X syndrome (FXS). It is not simply that toilet training is delayed for these individuals, but it often requires specific behavioral techniques that address the physical and behavioral phenotype of children with FXS.
Toilet training continues to be an important issue for families who have children with Fragile X syndrome. Several articles on the topic have appeared in previous publications. They mostly focused on introducing toilet training activities to younger children. It has been assumed that children of all ages would benefit from the same strategies, and if they were not initially successful with them, they may never make progress in toilet training. Experience has shown these assumptions to be inaccurate. There is hope for older children (from about age eight and up), but they require a different approach to toilet training. This article addresses strategies found to be most successful in this population.
Posted on September 8, 2017
Autism, Behavior, Clinical Practices, Consensus Documents, Daily Living Strategies, Education, Financial Resources, Fragile X Clinics, Fragile X Syndrome, FXPOI, FXTAS, Genetics, Guidelines, Hyperarousal, Medication, Research, Seizures, Sensory Integration, Sleeping, Toilet Training, Treatment and Intervention
FXCRC and Clinics / Treatment and Intervention
The Guidelines represent expert consensus and not evidence-based studies. The clinical committee of the Fragile X Clinical & Research Consortium (FXCRC) could be thought of as a “consensus panel” since virtually every clinician in the USA seeing and managing a large number of patients with Fragile X syndrome and other Fragile X-associated Disorders is represented.
Toilet training the child with Fragile X syndrome (FXS) often, but not always, takes the same form as it does with other children. It starts with the basics: Parents may need to teach their child about “wet” and “dry” (applied to both urination and bowel movements). When checking your child’s diaper, let him know what
by Jayne Dixon Weber
This is one more story about children who do not want to go poo…in the toilet. (Sorry, I debated about which term to use): No. 2, BM, etc., but decided this one was the most fun to say out loud.) It is probably not for the faint of heart, though it does make you realize
It will probably take longer than usual to toilet train a child with Fragile X syndrome. The length of time it takes will depend on the child’s motoric or muscular difficulties, the child’s awareness of his body and sensations, as well as the level of mental retardation of other cognitive deficits. Toilet training a child