Tag: Research Recruitment

Research: Did you grow up in Iowa, or know someone who did?

Are you, or someone you know, a carrier of the FMR1 premutation? If so, you may be eligible for our study of language and social characteristics in fragile X syndrome and the FMR1 premutation! Our research team at Northwestern University is studying language and social characteristics related to the FMR1 gene involved in fragile X



Survey: Parent decision-making to inform Fragile X syndrome clinical drug trials

New survey study to investigate the decision-making process among parents considering enrolling their child with FXS in a clinical drug trial. Fill out a questionnaire which will ask you about factors related to deciding to enroll your child in a clinical drug trial, your views on clinical trials more generally, and potential barriers to participating



Study: Residential and Respite Care Services Survey

A study by Vanderbilt Kennedy Center A study for family members with intellectual members of adults with intellectual & developmental disabilities. Anonymously share your experience with residential care services and respite care services. 10 randomly selected participants will receive a $25 gift card to the store of their choice. Please note, the survey will take



Stanford: Telehealth Study for Disruptive Behavior

Who Can Participate? Boys with a diagnosis of fragile X syndrome Aged 3 to 10 years, inclusive Shows disruptive behaviors (e.g., aggression, self-injury, property destruction) What Participation Involves: Completing questionnaires about your child’s behavior every 4 weeks for 16 weeks Randomization to observation or in-home treatment What are the Benefits of Participating? Potential improvement in

Brief Social Skills Training for Boys with Developmental Disabilities

Who Can Participate? Boys between 8-18 years old diagnosed with an intellectual or developmental disability, ASD, or Fragile X Syndrome What Participation Involves: Visits to Stanford for 3–4 days Cognitive testing Behavioral skills training to improve social skills Two optional 30-minute MRI scans What are the Benefits of Participating? Potential improvement in your child’s social

Participate in Market Research Opportunity

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The NFXF is looking for 10 parents of children with a diagnosis of Fragile X syndrome, including both males and females, from all over the country, to participate in a market research opportunity related to medications. If selected, your contact information would be given to a pharmaceutical market research company. The pharmaceutical market research company

Assessment of Glutamatergic System in Fragile X syndrome

This announcement has been posted as a courtesy by the National Fragile X Foundation (NFXF) on behalf of Massachusetts General Hospital. The announcement and the parties conducting and sponsoring the research meet guidelines established by the NFXF regarding relevancy and appropriateness to Fragile X. The NFXF takes no position and makes no claims as to

General Guidelines for Research Recruitment Postings

General Guidelines for Research Recruitment Postings Content approved by the National Fragile X Foundation. The research is relevant to Fragile X. Appropriate/Relevant approvals from the poster’s institution or governing body are noted. The announcement is from a known or recognized researcher, institution or other research body. In instances when the submitter is not recognized by

CANDI & UMASS: Pilot Study for Children with Fragile X Syndrome

The Child and Adolescent NeuroDevelopment Initiative (CANDI) at the University of Massachusetts Medical School is conducting a pilot research study on Fragile X syndrome, sponsored by Fulcrum Therapeutics. The goal of this study is to test new ways of measuring results in Fragile X clinical trials. Eligible participants will have 3 study visits — 2



Study: Girl Behavior and NeuroDevelopment (Girl BAND)

Researchers at Stanford University are studying brain development in relation to behavior, cognition, and mood in girls with fragile X syndrome. The project is designed to improve our understanding of brain and behavioral growth in girls during a critical time in their development. Information gained from this research will improve our understanding of learning, behavioral



Studies of Brain/Body Interaction at Rutgers University

What is the study for? The goal of this study is to provide a comprehensive profile of the nervous systems in order to understand interactions between the brain and body, while an individual walks naturally and while breathing at a slow controlled pace. We aim to study these interactions among a variety of populations, from