Educational Conference Featuring: Tracy Murnan Stackhouse, MA, OTR/L, Developmental FX Ruth Meissner, MA, CCC-SLP, Developmental FX Sharyn Lincoln, MS, CGC, Boston Children’s Hospital Jonathan Picker, MBChB, PhD, Boston Children’s Hospital What will be presented? Fragile [...]
Toilet training the child with Fragile X syndrome (FXS) often, but not always, takes the same form as it does with other children. It starts with the basics: Parents may need to teach their child [...]
Mantras, like positive affirmations, really do have power. In our case, we have found mantras to be useful for both skill development and to support self-regulation. So what are mantras? Mantras are short, positive, instructive statements full of action words. We use them to quiet the mind and focus thinking and action.
Toilet training can be a difficult and challenging experience for children and parents alike, and the challenges can be magnified for families of children with Fragile X syndrome (FXS). It is not simply that toilet training is delayed for these individuals, but it often requires specific behavioral techniques that address the physical and behavioral phenotype of children with FXS.
Therapy is a fun, creative process – one of the reasons that we have been at this for so long! One of the challenges of being a therapist is staying on-top of the ever-emerging intervention techniques that come into practice. Not only is it important to know the best strategies available, but it is important to carefully analyze each technique for its utility and efficacy. As most strategies are typically devised or targeted at a population other than those with Fragile X syndrome (FXS), we have taken it upon ourselves to always analyze the strategies in light the FXS learning style. Most often we find it necessary to modify even the most researched interventions to work for individuals with FXS.
Fragile X experts Mouse and Tracy discuss how to adapt autism interventions for those with Fragile X syndrome.
“Siri, what is Fragile X syndrome?” She answers with: “I’m checking….here’s what I found.” She then provides links to the Wikipedia site definition of Fragile X, the NIH genetics home reference page on Fragile X and medicinenet page on Fragile X syndrome (FXS).
We have had the opportunity to visit the homes of many families raising children with Fragile X syndrome (FXS). One of the common sites we encounter is a playroom or play area chock-full of every toy known to man. The parents always remark, “I bought all these toys, but he won’t play with any of them!” This exasperation is likely familiar to many readers.
Sensory integration is the ability to organize light, sound, movement, and texture unconsciously and automatically, with no obvious effort. This organization is accompanied by age-appropriate behavior and emotional responses, social engagement, and cognitive reasoning [...]