NFXF Research

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2019 Fragile X Family Research Conference

UPDATE - LIVESTREAM The plan is to offer a livestream of the event. If all goes well, you can view the event online with the below links. 9:00AM-12:00 PM streaming link https://cchmcstream.cchmc.org/MediasiteEX/Play/56e60d779d7e4723b8975daa0c4067151d 1:00 PM-4:00 PM [...]

By | 2019-07-19T16:13:08+00:00 Jul 20, 2019|Comments Off on 2019 Fragile X Family Research Conference

Best Practices in Fragile X Syndrome Treatment Development

Best Practices in Fragile X Syndrome Treatment Development By Craig A. Erickson, Walter E. Kaufmann, Dejan B. Budimirovic, Ave Lachiewicz, Barbara Haas-Givler, Robert M. Miller, Jayne Dixon Weber, Leonard Abbeduto, David Hessl, Randi J. [...]

By | 2019-04-24T10:49:35+00:00 Apr 23, 2019|Comments Off on Best Practices in Fragile X Syndrome Treatment Development

Voice of FXS | Reports from a Survey on Treatment Priorities

Voice of People with Fragile X Syndrome and Their Families: Reports from a Survey on Treatment Priorities By Jayne Dixon Weber, Elizabeth Smith, Elizabeth Berry-Kravis, Diego Cadavid, David Hessl, and Craig Erickson This [...]

By | 2019-04-24T10:49:56+00:00 Apr 18, 2019|Comments Off on Voice of FXS | Reports from a Survey on Treatment Priorities