Tag: Guidelines

General Guidelines for Research Recruitment Postings

General Guidelines for Research Recruitment Postings Content approved by the National Fragile X Foundation. The research is relevant to Fragile X. Appropriate/Relevant approvals from the poster’s institution or governing body are noted. The announcement is from a known or recognized researcher, institution or other research body. In instances when the submitter is not recognized by

Consensus of the Fragile X Clinical & Research Consortium on Clinical Practices

The Guidelines represent expert consensus and not evidence-based studies. The clinical committee of the Fragile X Clinical & Research Consortium (FXCRC) could be thought of as a “consensus panel” since virtually every clinician in the USA seeing and managing a large number of patients with Fragile X syndrome and other Fragile X-associated Disorders is represented.