Tag: FXTAS

Fragile X-associated Tremor/Ataxia Syndrome (FXTAS) Consensus Document

FRAGILE X-ASSOCIATED TREMOR/ATAXIA SYNDROME (FXTAS) Consensus of the FXTAS Task Force and the Fragile X Clinical & Research Consortium Download the PDF Version Author note: This guideline document was written and reviewed by members of the Fragile X Clinical & Research Consortium (FXCRC) and by members of the International FXTAS consortium. It has been approved

Planning Your Visit to a Fragile X Clinic

Why should you visit a Fragile X clinic? Because you won’t hear, “Fragile what?” You will have the opportunity to meet with a team of people who will be able to provide guidance in many areas of raising your child or children. Just as importantly, once you establish a relationship with the Fragile X doctor,