Tag: Education

MA: Success Strategies for Individuals and Families Impacted by Fragile X

This educational conference features: Jennifer Epstein, PsyD, presenting on behavior management strategies and Craig Erickson, MD presenting existing and exploratory medication. Lisa Prock, MD from the Fragile X Program at Boston Children’s counseling families on liaising with school systems and Sharyn Lincoln MS CGC will lead session for newly diagnosed families. Carol Wilkinson MD PhD

FL: Educational Workshop

A Multidisciplinary Perspective On Intervention For Neurodevelopmental Disorders Presented By: Tracy Muran Stackhouse, MA, OTR Sarah Scharfenaker, MA, CCC-SLP Training Description Target Audience: OTs, PTs, SLPs, psychologists, educators, social workers, and family members This workshop will provide participants best practices from the fields of speech and language and occupational therapy to develop multidisciplinary interventions for

Call for Presentations now open for the 16th International Fragile X Conference

We are now accepting submissions for presentations at the 16th International Fragile X Conference to be held July 11-15, 2018 in Cincinnati, Ohio. Please be sure to submit by Tuesday, February 20, 2018 at Midnight Pacific Time. All presentations will be reviewed by at least three people. The Conference Committee will choose whether a presentation

6th Annual New Directions in Fragile X Conference

Targeting Social Skills and Behavioral Strategies for Home, School, and Work Featuring Dr. Jennifer Epstein Dr. Jennifer Epstein is a licensed clinical psychologist and health service provider with more than 20 years of experience working with children and families. She received her Psy.D. in Clinical Psychology from Wright State University. Addition to traditional child psychology

CO: Annual Fall Conference for Families and Professionals

Children’s Hospital Fragile X Clinic and the Colorado Fragile X Community Support Network group would like to invite you to participate in this incredible educational event! We are bringing together top professionals in our area for this one-day educational conference.  Speakers:  Karen S. Riley, PhD,  Dr.Nicole Tartaglia, Terry Katz, PhD & Katie Maron,  Rena Pitlik, MS, CCC-SLP, Erica Lindsey, MS Special Education,

Education and Fragile X Syndrome

Children whose development is affected by Fragile X syndrome are eligible for special education services. Part C of the Individuals with Disabilities Education Act (IDEA), a federal law, provides for services to children from birth to 3 years of age. Part B of IDEA mandates a free public education for children who qualify from the

Home Schooling and Fragile X

Whether you have decided to home school your child for a year or for an extended period, developing a curriculum can be a challenge. Start by setting goals for your child, research and experiment with ways your child learns, review various curriculums, and put together a program for your child. Here are websites to get

Early Intervention for Infants and Toddlers with Fragile X Syndrome

The Early Intervention Process The Early Intervention Program for Infants and Toddlers with Disabilities is the program known as Part C of the Individuals with Disabilities Education Act (IDEA). It is also known as Child Find. Part C is a federal grant program that encourages states to set up programs for young children with disabilities

Lesson Planning Guide

Download the Guide A Practical Approach for the Classroom This guide is intended for classroom teachers who may have little or no exposure to Fragile X syndrome (FXS). Our goal is to help make the teaching and learning environment from preschool through high school more effective, more efficient, and more rewarding for teachers and the

Planning for Emergency Events at School


With the anxiety and hyperarousal seen in children with Fragile X syndrome, it is important to plan for emergency events at your child’s school – a fire in the building and severe weather events, such as a tornado, a hurricane, a local fire, a chemical spill, etc. Lockdowns are discussed separately. If at all possible, develop a plan ahead of time, ideally at your child’s IEP. If that is not possible, ask for a meeting to discuss this first thing of the school year.

OT, SLP, AT & the IEP… Making Sense of the Alphabet Soup


Creating an IEP – or Individualized Educational Program – can be an incredibly confusing and daunting experience. The “alphabet soup” of acronyms and legalese often increases the anxiety and uneasiness for families. There are often many professionals in the room, some just popping in and out during the meeting, and families can feel isolated and

How an Adaptive Physical Education Class Should Be “Run”


One of the best programs that I have ever seen was the Adaptive Physical Education (PE) Class that was in place when my son, Ian, was in high school. It was a wonderful program where people with and without disabilities got to know each other. The program improved the confidence in students with developmental disabilities