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NFXF Chicago Learning Series

The National Fragile X Foundation in partnership with the Rush University Medical Center Fragile X and FXTAS clinic is hosting an education workshop. This workshop presents a unique opportunity where parents and professionals from around [...]

By |2019-10-03T14:32:53-04:00Nov 16, 2019||Comments Off on NFXF Chicago Learning Series

NFXF Kansas Chapter Learning Series

Premutation Carriers: FXAND, FXPOI, FXTAS and Everything In Between! The National Fragile X Foundation Kansas Chapter is hosting its 7th New Directions in Fragile X Conference that is going to be all about FX carriers! [...]

By |2019-10-16T11:21:24-04:00Nov 2, 2019||Comments Off on NFXF Kansas Chapter Learning Series

Changing Behaviors and Optimizing Learning Through Integrated Intervention

Educational Conference Featuring: Tracy Murnan Stackhouse, MA, OTR/L, Developmental FX Ruth Meissner, MA, CCC-SLP, Developmental FX Sharyn Lincoln, MS, CGC, Boston Children’s Hospital Jonathan Picker, MBChB, PhD, Boston Children’s Hospital What will be presented? Fragile [...]

By |2019-08-27T17:33:42-04:00Oct 26, 2019||Comments Off on Changing Behaviors and Optimizing Learning Through Integrated Intervention

Education and Fragile X Syndrome

Children whose development is affected by Fragile X syndrome are eligible for special education services. Part C of the Individuals with Disabilities Education Act (IDEA), a federal law, provides for services to children from birth [...]

By |2017-09-19T10:55:29-04:00Sep 14, 2017|Education, Treatment and Intervention|Comments Off on Education and Fragile X Syndrome

Raise Fragile X Awareness with Our Printable Cards

Have you ever been in a situation where you needed a quick way to explain Fragile X to a stranger or acquaintance? Maybe there is an incident at the grocery store and some people begin [...]

By |2018-10-03T14:55:09-04:00Aug 23, 2017|Education|Comments Off on Raise Fragile X Awareness with Our Printable Cards

Back to School Without a Bang

Several strategies can help in guiding a successful transition. If the student is going back to the same school with the same teaching staff, the transition process is easier and requires less support. When the student changes schools, neighborhoods, or programs, additional support is required.

By |2017-08-17T17:12:17-04:00Jun 2, 2017|Behavior, Braden on Behavior|Comments Off on Back to School Without a Bang

Planning for Emergency Events at School

With the anxiety and hyperarousal seen in children with Fragile X syndrome, it is important to plan for emergency events at your child’s school – a fire in the building and severe weather events, such as a tornado, a hurricane, a local fire, a chemical spill, etc. Lockdowns are discussed separately. If at all possible, develop a plan ahead of time, ideally at your child's IEP. If that is not possible, ask for a meeting to discuss this first thing of the school year.

By |2017-09-15T15:47:42-04:00Apr 12, 2017|Education, Treatment and Intervention|Comments Off on Planning for Emergency Events at School

Understanding the Fragile X Learning Style for Better Results

“Siri, what is Fragile X syndrome?” She answers with: “I’m checking….here’s what I found.” She then provides links to the Wikipedia site definition of Fragile X, the NIH genetics home reference page on Fragile X and medicinenet page on Fragile X syndrome (FXS).

By |2017-08-18T14:11:07-04:00Mar 20, 2014|Coffee Talk with Mouse and Tracy, Treatment and Intervention|Comments Off on Understanding the Fragile X Learning Style for Better Results
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