Targeting Social Skills and Behavioral Strategies for Home, School, and Work Featuring Dr. Jennifer Epstein Dr. Jennifer Epstein is a licensed clinical psychologist and health service provider with more than 20 years of experience working with children and families. She received her Psy.D. in Clinical Psychology from Wright State University. Addition to traditional child psychology
by Jayne Dixon Weber
A grandmother of a newly diagnosed grandson once called me to talk about the diagnosis. “Where is the hope?” she asked. I did not say anything to see if she would go on. “I mean, I read ‘mental retardation’, low IQ, special education, behavior problems, delayed speech, and on and on. So, where’s the hope?”
Please join the Louisiana Fragile X Association as internationally renowned Fragile X Experts Sarah Scharfenaker, MA, CCC-SLP Developmental FX; Denver, CO and Tracy Murnan Stackhouse, MA, OTR, Developmental FX; Denver, CO share strategies for managing hyperarousal in individuals with Fragile X Syndrome. This course will provide an overview of hyperarousal in Fragile X syndrome (FXS),
Halloween is a day that many children look forward to all year long, but it can offer challenges for children with Fragile X syndrome. While it is typically “all about” the candy for many children, there are actually a variety of activities during this season that you can choose from, so it need not be
When consulting with parents regarding behavior issues, the topic of time-out comes up during the majority of my conversations. Parents and professionals alike have used time-out as an effective tool for many years—even before it was called time-out. Research has supported its usefulness with typically developing children as well as those with delays such as
Toilet training the child with Fragile X syndrome (FXS) often, but not always, takes the same form as it does with other children. It starts with the basics: Parents may need to teach their child about “wet” and “dry” (applied to both urination and bowel movements). When checking your child’s diaper, let him know what
A variety of therapies can be helpful in addressing many of the issues seen in Fragile X syndrome. Because the impact of Fragile X is so varied, it is important to do a careful evaluation of the individual’s abilities and difficulties in order to tailor a treatment plan to address specific needs. There are many
Have you ever been in a situation where you needed a quick way to explain Fragile X to a stranger or acquaintance? Maybe there is an incident at the grocery store and some people begin staring. Explaining Fragile X can be a difficult topic to broach, so we're here with a quick way to introduce
This presentation will provide an overview of executive functioning skills and deficits. There will be a discussion of how EF deficits affect schoolwork, social skills and daily living skills. The emphasis will be on describing and selecting practical strategies to teach school-aged girls with fragile X who have executive functioning deficits.
I learned pretty quickly that visits to a dentist were going to be a challenge for my son, Ian. I demonstrated the process over and over again. I helped him brush his teeth, I encouraged him to brush his own teeth, I tried different tooth brushes and I tried different kinds of toothpaste. I took Ian to my dentist to watch me get my teeth cleaned. He saw his sister get her teeth cleaned.
Mantras, like positive affirmations, really do have power. In our case, we have found mantras to be useful for both skill development and to support self-regulation. So what are mantras? Mantras are short, positive, instructive statements full of action words. We use them to quiet the mind and focus thinking and action.
Toilet training can be a difficult and challenging experience for children and parents alike, and the challenges can be magnified for families of children with Fragile X syndrome (FXS). It is not simply that toilet training is delayed for these individuals, but it often requires specific behavioral techniques that address the physical and behavioral phenotype of children with FXS.
Let’s discuss verbal perseveration (VP), a very typical and pervasive aspect of language in Fragile X syndrome. Does VP interfere with daily living and activities? You bet your boots it can! At home, school, after school activities, transition times: VP can have an impact on them all. On the list of questions parents ask, verbal perseveration is at the top.
The holidays can be stressful for anyone, but for a person living with Fragile X syndrome, parties and gatherings can be especially challenging. Provided here are tips and things to consider when planning for a person living with FXS.
Therapy is a fun, creative process – one of the reasons that we have been at this for so long! One of the challenges of being a therapist is staying on-top of the ever-emerging intervention techniques that come into practice. Not only is it important to know the best strategies available, but it is important to carefully analyze each technique for its utility and efficacy. As most strategies are typically devised or targeted at a population other than those with Fragile X syndrome (FXS), we have taken it upon ourselves to always analyze the strategies in light the FXS learning style. Most often we find it necessary to modify even the most researched interventions to work for individuals with FXS.