Daily Living Strategies

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NW Region Fragile X Conference 2019

KEYNOTE SPEAKER: DR. KAREN RILEY Dr. Riley lectures extensively throughout the U.S. as well as internationally on behavioral and educational interventions for children with Neurodevelopmental Disorders, primarily those with Fragile X syndrome.  

By | 2019-04-25T16:26:19+00:00 May 18, 2019|Comments Off on NW Region Fragile X Conference 2019

6th Annual New Directions in Fragile X Conference

Targeting Social Skills and Behavioral Strategies for Home, School, and Work Featuring Dr. Jennifer Epstein Dr. Jennifer Epstein is a licensed clinical psychologist and health service provider with more than 20 years of experience working [...]

By | 2017-11-07T11:27:20+00:00 Nov 18, 2017|Comments Off on 6th Annual New Directions in Fragile X Conference

LA: Hands-On Strategies for Hyperarousal in Fragile X Syndrome

Please join the Louisiana Fragile X Association as internationally renowned Fragile X Experts Sarah Scharfenaker, MA, CCC-SLP Developmental FX; Denver, CO and Tracy Murnan Stackhouse, MA, OTR, Developmental FX; Denver, CO share strategies for managing [...]

By | 2017-10-13T12:16:08+00:00 Oct 21, 2017|Comments Off on LA: Hands-On Strategies for Hyperarousal in Fragile X Syndrome

Ten Rules of Time-Out

When consulting with parents regarding behavior issues, the topic of time-out comes up during the majority of my conversations. Parents and professionals alike have used time-out as an effective tool for many years—even before [...]

By | 2017-12-29T09:52:28+00:00 Sep 14, 2017|Behavior, Treatment and Intervention|Comments Off on Ten Rules of Time-Out

Sensory Diet

A variety of therapies can be helpful in addressing many of the issues seen in Fragile X syndrome. Because the impact of Fragile X is so varied, it is important to do a careful evaluation [...]

By | 2017-09-19T10:56:35+00:00 Sep 8, 2017|Treatment and Intervention|Comments Off on Sensory Diet

Raise Fragile X Awareness with Our Printable Cards

Have you ever been in a situation where you needed a quick way to explain Fragile X to a stranger or acquaintance? Maybe there is an incident at the grocery store and some people begin [...]

By | 2018-10-03T14:55:09+00:00 Aug 23, 2017|Education|Comments Off on Raise Fragile X Awareness with Our Printable Cards

Webinar: Strategies for Females with Fragile X

This presentation will provide an overview of executive functioning skills and deficits. There will be a discussion of how EF deficits affect schoolwork, social skills and daily living skills. The emphasis will be on describing and selecting practical strategies to teach school-aged girls with fragile X who have executive functioning deficits.

By | 2017-08-17T17:26:25+00:00 May 22, 2017|Upcoming Webinar|Comments Off on Webinar: Strategies for Females with Fragile X

Visit to the Dentist

I learned pretty quickly that visits to a dentist were going to be a challenge for my son, Ian. I demonstrated the process over and over again. I helped him brush his teeth, I encouraged him to brush his own teeth, I tried different tooth brushes and I tried different kinds of toothpaste. I took Ian to my dentist to watch me get my teeth cleaned. He saw his sister get her teeth cleaned.

By | 2018-12-06T11:14:38+00:00 May 10, 2017|Behavior|Comments Off on Visit to the Dentist

Doggone It…Mantras Are Great for Learning!

Mantras, like positive affirmations, really do have power. In our case, we have found mantras to be useful for both skill development and to support self-regulation. So what are mantras? Mantras are short, positive, instructive statements full of action words. We use them to quiet the mind and focus thinking and action.

By | 2017-08-17T17:29:16+00:00 Apr 19, 2017|Behavior, Coffee Talk with Mouse and Tracy|Comments Off on Doggone It…Mantras Are Great for Learning!

A Holistic Approach to Toilet Training

Toilet training can be a difficult and challenging experience for children and parents alike, and the challenges can be magnified for families of children with Fragile X syndrome (FXS). It is not simply that toilet training is delayed for these individuals, but it often requires specific behavioral techniques that address the physical and behavioral phenotype of children with FXS.

By | 2017-08-18T12:13:13+00:00 Mar 29, 2017|Behavior, Treatment and Intervention|Comments Off on A Holistic Approach to Toilet Training

Verbal Perseveration! Verbal Perseveration!

Let's discuss verbal perseveration (VP), a very typical and pervasive aspect of language in Fragile X syndrome. Does VP interfere with daily living and activities? You bet your boots it can! At home, school, after school activities, transition times: VP can have an impact on them all. On the list of questions parents ask, verbal perseveration is at the top.

By | 2017-08-18T12:11:05+00:00 Mar 22, 2017|Behavior, Coffee Talk with Mouse and Tracy|Comments Off on Verbal Perseveration! Verbal Perseveration!
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