Let the Awareness Continue!

By |2021-09-30T11:23:43-04:00Aug 13, 2021|Blog|

It looks like in many places we're back to wearing masks, or will be soon. Our family has pulled out all our favorite masks and getting used to them all over again.

NFXF Webinar: Fragile X Syndrome

By |2021-05-18T16:35:46-04:00May 18, 2021|

Here is your recording of the NFXF webinar: Fragile X Syndrome. Dr. Nicole Tartaglia joins us to discuss Fragile X syndrome (FXS) - everything from brief descriptions of the Fragile X-associated disorders, such as [...]

Fragile X and Face Masks (Not What FXFM Stands For)

By |2021-01-05T18:14:26-05:00Oct 14, 2020|Education|

Looks like the wearing of face masks is here to stay for a while, so you may as well try to have some fun with it. I know, I know – they are not that fun. But, I did have a parent send me a link to a mask that has a chew cord as part of the mask. I just love how creative people are.

A COVID-19 Social Story from NFXF

By |2021-01-05T18:48:26-05:00Apr 27, 2020|Treatment & Strategies|

The National Fragile X Foundation has created a social story to reflect the changing requirements that governments are enacting. There’s a lot of information — and misinformation — about COVID-19 out there, but there’s no doubt it’s impacted families in many, many ways.

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