Community Support Network

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Volunteer Highlight: Rachel DeLine

Written by Kimberly Powell Beer is hard  work! Just ask Rachel DeLine, Greater Atlanta Chapter Leader. The Greater Atlanta area has been steadily growing in the craft beer industry with more and more breweries opening [...]

By | 2018-03-31T13:11:50+00:00 Mar 30, 2018|Community, Fundraising|Comments Off on Volunteer Highlight: Rachel DeLine

Northern California, help us serve you!

Recently, the Northern California Fragile X support group became the NFXF Northern California Chapter. Becoming a formal chapter of the National Fragile X Foundation provides us with many benefits that will help us better connect [...]

By | 2018-01-05T15:09:39+00:00 Jan 5, 2018|Northern California|Comments Off on Northern California, help us serve you!

Utah Reaches New Heights While Rock Climbing!

12 Finger Outdoor Adventure brought their rock climbing gear and equipment along with several of their employees to take the time to get our Fragile X-ers exposed to rock climbing. Siblings of those affected by [...]

By | 2017-10-24T10:51:36+00:00 Oct 2, 2017|Central Utah|Comments Off on Utah Reaches New Heights While Rock Climbing!

Western Mass Speaks to Medical Students

Denise Devine of Western Massachusetts Fragile X spoke to first year medical students about iliving with a family member with Fragile X. She showed pictures of Patrick through the years and other families in the Western [...]

By | 2017-09-19T10:57:02+00:00 Sep 5, 2017|Western Massachusetts|Comments Off on Western Mass Speaks to Medical Students

Fun in the Sun in St. Louis!

August 29, 2017 - The Fragile X Resource Center of Missouri had some fun in the sun! Attendees enjoyed delicious BBQ, a dip in the pool, and lots of laughs at the home of Mike and [...]

By | 2017-09-19T10:57:44+00:00 Sep 5, 2017|St. Louis|Comments Off on Fun in the Sun in St. Louis!

St. Louis Plays Softball!

Mike and Carol Schambach of Vandallia, MO hosted the 2nd Annual FX Softball Tournament benefiting the Fragile X Resource Center of Missouri. The event was held in Farber, MO and also featured volleyball and horseshoe [...]

By | 2017-08-28T13:40:38+00:00 Jul 15, 2017|St. Louis|Comments Off on St. Louis Plays Softball!

Heartland Fragile X Bikes for Fragile X!

Heartland Fragile X once again held an amazing and successful Fragile X awareness bike race! Sixty-three riders and seventeen volunteers enjoyed great weather that day. A majority of them were returning from last year! Between the sponsors, [...]

By | 2017-08-10T14:03:36+00:00 Jun 22, 2017|Heartland|Comments Off on Heartland Fragile X Bikes for Fragile X!

LINKS Leaders Gather in St. Louis

Individual commitment to a group effort—that is what makes a team work, a company work, a civilization work. The backs of sixty-three T-shirts bore this quote at the NFXF LINKS Leadership Summit in [...]

By | 2017-09-05T16:49:20+00:00 Nov 6, 2013|Community Support Network|Comments Off on LINKS Leaders Gather in St. Louis