Individuals with FXS often have difficulty establishing meaningful friendships. Limited social skills, social anxiety and an often narrow range of interests contribute to these difficulties. Various interventions can increase the social network of those with FXS. The following ideas are provided to help such individuals and their families. Building Early Social Skills Parents are in
This educational conference features: Jennifer Epstein, PsyD, presenting on behavior management strategies and Craig Erickson, MD presenting existing and exploratory medication. Lisa Prock, MD from the Fragile X Program at Boston Children’s counseling families on liaising with school systems and Sharyn Lincoln MS CGC will lead session for newly diagnosed families. Carol Wilkinson MD PhD
Targeting Social Skills and Behavioral Strategies for Home, School, and Work Featuring Dr. Jennifer Epstein Dr. Jennifer Epstein is a licensed clinical psychologist and health service provider with more than 20 years of experience working with children and families. She received her Psy.D. in Clinical Psychology from Wright State University. Addition to traditional child psychology
Traveling with your child living with Fragile X syndrome on an airplane can be very stressful for the both of you. These tips are provided by parents based on their experiences with their own children. You will see that what works for one child may not work for another. That’s okay. Find what works for
Halloween is a day that many children look forward to all year long, but it can offer challenges for children with Fragile X syndrome. While it is typically “all about” the candy for many children, there are actually a variety of activities during this season that you can choose from, so it need not be
When consulting with parents regarding behavior issues, the topic of time-out comes up during the majority of my conversations. Parents and professionals alike have used time-out as an effective tool for many years—even before it was called time-out. Research has supported its usefulness with typically developing children as well as those with delays such as
It will probably take longer than usual to toilet train a child with Fragile X syndrome. The length of time it takes will depend on the child’s motoric or muscular difficulties, the child’s awareness of his body and sensations, as well as the level of mental retardation of other cognitive deficits. Toilet training a child
by Jayne Dixon Weber
This is one more story about children who do not want to go poo…in the toilet. (Sorry, I debated about which term to use): No. 2, BM, etc., but decided this one was the most fun to say out loud.) It is probably not for the faint of heart, though it does make you realize
Toilet training the child with Fragile X syndrome (FXS) often, but not always, takes the same form as it does with other children. It starts with the basics: Parents may need to teach their child about “wet” and “dry” (applied to both urination and bowel movements). When checking your child’s diaper, let him know what
Several strategies can help in guiding a successful transition. If the student is going back to the same school with the same teaching staff, the transition process is easier and requires less support. When the student changes schools, neighborhoods, or programs, additional support is required.
This presentation will provide an overview of executive functioning skills and deficits. There will be a discussion of how EF deficits affect schoolwork, social skills and daily living skills. The emphasis will be on describing and selecting practical strategies to teach school-aged girls with fragile X who have executive functioning deficits.
I learned pretty quickly that visits to a dentist were going to be a challenge for my son, Ian. I demonstrated the process over and over again. I helped him brush his teeth, I encouraged him to brush his own teeth, I tried different tooth brushes and I tried different kinds of toothpaste. I took Ian to my dentist to watch me get my teeth cleaned. He saw his sister get her teeth cleaned.
Mantras, like positive affirmations, really do have power. In our case, we have found mantras to be useful for both skill development and to support self-regulation. So what are mantras? Mantras are short, positive, instructive statements full of action words. We use them to quiet the mind and focus thinking and action.
With the anxiety and hyperarousal seen in children with Fragile X syndrome, it is important to plan for emergency events at your child’s school – a fire in the building and severe weather events, such as a tornado, a hurricane, a local fire, a chemical spill, etc. Lockdowns are discussed separately. If at all possible, develop a plan ahead of time, ideally at your child’s IEP. If that is not possible, ask for a meeting to discuss this first thing of the school year.