Webinars & Videos
Featured
In the first webinar of NFXF’s 2026 Webinar Series, we hear updates from each of the current NIH-funded Fragile X Centers of Excellence. This funding remains critical to sustaining progress and advancing future discoveries.
Latest
This session reviews features of attention problems, hyperactivity, and impulsivity in FXS and reviews previous studies of ADHD in Fragile X.
Barbara Haas-Givler and Cora Taylor discuss executive functioning in individuals with both the Fragile X full mutation and the premutation, including what executive function is and strategies to support individuals.
All Webinars and Videos
Dr. Heather Hipp, a reproductive endocrinologist at Emory University, discusses reproductive considerations for women with a Fragile X premutation, including FXPOI and the process for diagnosis.
Descubre qué es la premutación del síndrome del cromosoma X frágil en tan solo 90 segundos. Este breve video animado de la Fundación Nacional del Síndrome del Cromosoma X Frágil explica cómo la premutación del cromosoma X frágil afecta a las personas y a las familias, y por qué es importante concienciar sobre este tema.
Learn what the Fragile X premutation is in just 90 seconds. This short animated video from the National Fragile X Foundation explains how the Fragile X premutation affects individuals and families — and why awareness matters.
These conference sessions explore new insights into Fragile X premutation carriers, including cognitive profiles in school-age children, healthcare experiences of women with FXPOI, one-year progression of FXTAS, and tremor characteristics in FXTAS vs. non-FXTAS premutation carriers.
Explore cutting-edge Fragile X premutation research uncovering how RAN translation and CGG repeat RNA toxicity drive FXTAS neurodegeneration, and how the epigenetic regulator Tet2 influences ovarian dysfunction in premutation carriers — highlighting new mechanisms and therapeutic targets. With Kate Shelly and Samantha Grudzien.
Join Dr. Peter Todd as he shares the collective hope and anticipation surrounding the promising future of treatments for Fragile X-associated conditions. In this keynote session at the 19th NFXF International Fragile X Conference, Dr. Todd discusses the history, challenges, and advancements that have helped shape the trajectory of treatments for Fragile X-associated conditions.
Genetic counselor Susan Howell explains how to help self-advocates and siblings understand genetic results, associated reproductive implications, and the landscape of reproductive options. This session aims to help self-advocates and siblings understand genetic results, associated reproductive implications, and the landscape of reproductive options.
Dr. Deby Barbouth explores evidence-based lifestyle choices, mind-body techniques, and more to enhance well-being. This holistic approach aims to empower individuals living with the Fragile X premutation for a transformative journey toward lasting well-being and self-care.
Panelists, Dr. Emily Allen, Dr. Heather Hipp, and Cecilia Bouska, shared their expertise on a range of important topics on FXPOI, including diagnostic criteria, how to communicate concerns with your healthcare provider, and treatment options tailored to individual needs.
Reproductive health is a broad topic, covering the physical and emotional components of areas like puberty, sexuality, reproductive options, and family planning. These topics can be challenging to cover, but they are important!