Webinars & Videos
Featured
In the first webinar of NFXF’s 2026 Webinar Series, we hear updates from each of the current NIH-funded Fragile X Centers of Excellence. This funding remains critical to sustaining progress and advancing future discoveries.
Latest
Guidelines with relevant resources for families with young children with FXS that are aligned with national early childhood special education and early intervention best practices.
Lauren Moskowitz covers how to assess the functions of challenging behavior (why the behavior is occurring) by first identifying the antecedents that “trigger” it and the consequences that follow it.
All Webinars and Videos
The NFXF and LivJoy Foundation are partnering to present the Females with Fragile X syndrome webinar series. Join NFXF Executive Director Hilary Rosselot, LivJoy Foundation President Rachel Clouse, and LivJoy Foundation Fellow Dr. Lauren Jenner.
Dr. Heather Hipp, a reproductive endocrinologist at Emory University, discusses reproductive considerations for women with a Fragile X premutation, including FXPOI and the process for diagnosis.
The multidisciplinary panel discussed the unique experiences and support needs of females living with Fragile X syndrome. While females may sometimes exhibit fewer overt support needs, they can be as significantly affected as males. This complexity highlights the necessity for individualized approaches to support and intervention.
Reproductive health is a broad topic, covering the physical and emotional components of areas like puberty, sexuality, reproductive options, and family planning. These topics can be challenging to cover, but they are important!
Topics covered include considerations to take into account when looking into post-secondary education options, resources to help prepare for puberty, strategies (with examples) on how to support task initiation and completion, and backward and forward chaining and transitions.
Barbara Haas-Givler, from the Geisinger Fragile X clinic in Pennsylvania, gave a talk at the 18th NFXF International Fragile X Conference about executive functioning — what it is, how to identify it, and strategies for improving it. While the title says it is for girls, this video has ideas that everyone can use — boys and girls, young and old, even moms, dads, and other caregivers.
Experts in the field discuss support and solutions for females with Fragile X in this panel discussion and Q&A.
Dr. Marcia Braden presents a webinar about females and Fragile X syndrome. Whether you are a parent of a female with FXS, an adult female with FXS, or a professional working with females, this webinar will help you better understand the features associated with the syndrome. Information processing, cognitive strengths and weaknesses, and social issues are also discussed, including strategies to address each.
Emily Allen discusses some of the health concerns of women who are premutation carriers. She shares Fragile X-associated primary ovarian insufficiency research findings from her group at Emory University as well as from other researchers and covers some of the more recent findings of other medical conditions that are reported by women who carry a premutation, such as depression, anxiety, headaches, and autoimmune conditions.
When you or someone in your family is told you are a “carrier” for a Fragile X mutation, many questions arise. The expert panel helps answer what it means for your health, your family, and your future.