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Descubre qué es la premutación del síndrome del cromosoma X frágil en tan solo 90 segundos. Este breve video animado de la Fundación Nacional del Síndrome del Cromosoma X Frágil explica cómo la premutación del cromosoma X frágil afecta a las personas y a las familias, y por qué es importante concienciar sobre este tema.
En este vídeo de 90 segundos, respondemos a la pregunta más frecuente: “¿Qué es el síndrome del cromosoma X frágil?”, explicando en qué consiste este síndrome, la premutación y las afecciones asociadas, así como la forma en que se hereda.
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Una discusión sobre los medicamentos para el síndrome del cromosoma X frágil, con la Dra. Randi J. Hagerman, profesora distinguida de Pediatría, presidenta de investigación del síndrome del cromosoma X frágil e investigadora del Instituto MIND de UC Davis.
Join Dr. Peter Todd as he shares the collective hope and anticipation surrounding the promising future of treatments for Fragile X-associated conditions. In this keynote session at the 19th NFXF International Fragile X Conference, Dr. Todd discusses the history, challenges, and advancements that have helped shape the trajectory of treatments for Fragile X-associated conditions.
During this 45-minute Lunch & Learn webinar, Dr. Erickson discussed details of a single-dose medication study in Fragile X syndrome (FXS), including how the study was done, what the results showed, and moreover, why the results are important, what they mean for the FXS community, and next steps to move us forward.
This panel discussion is on the topic of medications and treatments available for Fragile X Syndrome.
This session will cover currently available supportive medications for treating anxiety, irritability, and agitated and aggressive behaviors that can be problematic in Fragile X syndrome. Medication classes and specific medications within each class will be described.
This session, presented by two developmental pediatricians and a Fragile X Nurse, is designed for those considering starting medications for their child, and/or those who would like new strategies and approaches to considering medication changes.
Jayne Dixon Weber and Dr. Craig Erickson discuss new medications and review existing medications used for various issues related to Fragile X syndrome.
Our distinguished presenters discuss currently available supportive medications for treating anxiety and irritable, agitated, and aggressive behaviors in Fragile X syndrome. Medication classes and specific medications within each class are discussed, including SSRIs, mood stabilizers, and antipsychotics. Also discussed is the mechanism of action of different medications, dosing strategies, and potential benefits and side effects seen in different medications.
We asked Dr. Craig Erickson, the director of the Cincinnati Fragile X Research and Treatment Center, to answer the question, Can I use CBD to treat Fragile X syndrome? Watch as he discusses the use of cannabidiol (CBD) for people with FXS.
Our expert panel discusses and takes questions from viewers at the 2020 International Fragile X Conference about medications ranging from what age anxiety medications should be considered, which issues should be targeted first, medications for aggressive behavior, side effects, and much much more.