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The NFXF and LivJoy Foundation have partnered to present the Females with Fragile X syndrome webinar series. Join NFXF Executive Director Hilary Rosselot, LivJoy Foundation President Rachel Clouse, and LivJoy Foundation Fellow Dr. Lauren Jenner.
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Experts discuss the unique health, wellness, puberty, and fertility considerations for girls and women with Fragile X syndrome (FXS), including how needs can vary widely across individuals. Panelists discuss guidance on puberty conversations, reproductive healthcare, emotional wellness, sleep, exercise, and supporting independence.
An update on Shionogi’s EXPERIENCE clinical trial program in Fragile X syndrome, hosted by FRAXA and the National Fragile X Foundation. This webinar discusses the recently shared trial updates, what is known so far, and what comes next.
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Guided by moderator Hilary Rosselot, our four guests — Susan Buchanan, Nancy Carlson, Tracey Franks, and Ileen Rissmiller — discuss adult housing for individuals living with developmental disabilities from their perspective as parents.
Guided by moderator Jayne Dixon Weber, our three guests — Dushawn Powell, Anita Inz, and Susan Buchanan — discuss adult housing for individuals living with developmental disabilities from the perspective of parents and social workers.
As your child gets older, there are many decisions to be made. One of the biggest decisions is determining the best living situation for your young adult. Jayne Dixon Weber presents living options for adults and takes questions in our housing webinar.
Offering a practical introduction to increasing independence and accessing supports and services for adults.