Webinars & Videos
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This series of on-demand videos helps anyone seeking a clearer understanding of Fragile X syndrome and the Fragile X premutation.
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Explore caregiving across the lifespan in Fragile X. Hear from a panel of parent caregivers about shared experiences, practical insights, and support for families navigating the journey.
Explore clinical trial challenges, outcome measures, treatment development, and how researchers, clinicians, families, and advocates are working together to advance better treatments for Fragile X.
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Guided by moderator Hilary Rosselot, our four guests — Susan Buchanan, Nancy Carlson, Tracey Franks, and Ileen Rissmiller — discuss adult housing for individuals living with developmental disabilities from their perspective as parents.
Guided by moderator Jayne Dixon Weber, our three guests — Dushawn Powell, Anita Inz, and Susan Buchanan — discuss adult housing for individuals living with developmental disabilities from the perspective of parents and social workers.
As your child gets older, there are many decisions to be made. One of the biggest decisions is determining the best living situation for your young adult. Jayne Dixon Weber presents living options for adults and takes questions in our housing webinar.
Offering a practical introduction to increasing independence and accessing supports and services for adults.