Webinars & Videos
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In the first webinar of NFXF’s 2026 Webinar Series, we hear updates from each of the current NIH-funded Fragile X Centers of Excellence. This funding remains critical to sustaining progress and advancing future discoveries.
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Guidelines with relevant resources for families with young children with FXS that are aligned with national early childhood special education and early intervention best practices.
Lauren Moskowitz covers how to assess the functions of challenging behavior (why the behavior is occurring) by first identifying the antecedents that “trigger” it and the consequences that follow it.
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Dr. Deby Barbouth explores evidence-based lifestyle choices, mind-body techniques, and more to enhance well-being. This holistic approach aims to empower individuals living with the Fragile X premutation for a transformative journey toward lasting well-being and self-care.
Rebecca Shaffer leads two presentations about how to stay calm and manage intense emotions. The first is for self-advocates, and the second is for caregivers of individuals with Fragile X syndrome.
The multidisciplinary panel discussed the unique experiences and support needs of females living with Fragile X syndrome. While females may sometimes exhibit fewer overt support needs, they can be as significantly affected as males. This complexity highlights the necessity for individualized approaches to support and intervention.
The treatment of Fragile X syndrome can be complex, and many families benefit from receiving care from a multidisciplinary team. But what is a multidisciplinary team? A multidisciplinary team is a unit of professionals who specialize in different fields and work together toward a common goal.
During this Multidisciplinary Treatment of Fragile X Syndrome one-hour webinar, the panelists discussed the benefits of a multidisciplinary team, and the ways various professionals collaborate to effectively support and treat individuals with Fragile X syndrome.
This presentation focuses on signs of emotion dysregulation in Fragile X syndrome and ways to respond including practical strategies and an Emotion Regulation Toolkit to download.
Emily Allen discusses some of the health concerns of women who are premutation carriers. She shares Fragile X-associated primary ovarian insufficiency research findings from her group at Emory University as well as from other researchers and covers some of the more recent findings of other medical conditions that are reported by women who carry a premutation, such as depression, anxiety, headaches, and autoimmune conditions.