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This series of on-demand videos helps anyone seeking a clearer understanding of Fragile X syndrome and the Fragile X premutation.
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Through personal stories, this Keynote panel of speakers delves into the boundless potential and opportunities realized by those living with Fragile X. Learn how individuals and families have navigated challenges, uncovered strengths, and forged inspiring pathways and connections.
Experts discuss the unique health, wellness, puberty, and fertility considerations for girls and women with Fragile X syndrome (FXS), including how needs can vary widely across individuals. Panelists discuss guidance on puberty conversations, reproductive healthcare, emotional wellness, sleep, exercise, and supporting independence.
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The multidisciplinary panel discussed the unique experiences and support needs of females living with Fragile X syndrome. While females may sometimes exhibit fewer overt support needs, they can be as significantly affected as males. This complexity highlights the necessity for individualized approaches to support and intervention.
This family-friendly introductory session unpacks the complexities of assistive technology from early childhood to special education IEPs through to adulthood. Families will learn about no-to-high-tech assistive technology with examples and how it works.
Topics covered include considerations to take into account when looking into post-secondary education options, resources to help prepare for puberty, strategies (with examples) on how to support task initiation and completion, and backward and forward chaining and transitions.
Understanding the behavioral challenges and common triggers in Fragile X syndrome are essential to promoting successful positive social skill development. The presentation will provide an overview of current evidence-based practices for supporting social skills development. Resources and strategies for implementing social skills support in the classroom, home, and community for school-aged children with FXS will be provided.
This session discusses specific challenges that arise during puberty and adolescence while also providing youth and their caregivers with some strategies and resources to assist in navigating the teenage years.
Experts in the field discuss support and solutions for females with Fragile X in this panel discussion and Q&A.
This interdisciplinary presentation, featuring speech-language pathologists and an occupational therapist, reviews language, literacy, sensory, and social implications within the school setting and IEP process.
Dr. Marcia Braden presents a webinar about females and Fragile X syndrome. Whether you are a parent of a female with FXS, an adult female with FXS, or a professional working with females, this webinar will help you better understand the features associated with the syndrome. Information processing, cognitive strengths and weaknesses, and social issues are also discussed, including strategies to address each.
The most popular and well-attended NFXF International Fragile X Conference sessions — by far — are the male and female self-advocate panels. Moderated by Dr. Marcia Braden, the panels provide a unique insight into the lives of adults with Fragile X syndrome.


