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This series of on-demand videos helps anyone seeking a clearer understanding of Fragile X syndrome and the Fragile X premutation.
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Through personal stories, this Keynote panel of speakers delves into the boundless potential and opportunities realized by those living with Fragile X. Learn how individuals and families have navigated challenges, uncovered strengths, and forged inspiring pathways and connections.
Experts discuss the unique health, wellness, puberty, and fertility considerations for girls and women with Fragile X syndrome (FXS), including how needs can vary widely across individuals. Panelists discuss guidance on puberty conversations, reproductive healthcare, emotional wellness, sleep, exercise, and supporting independence.
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Recently, the American Journal of Medical Genetics Part A congratulated Fragile X researchers for authoring not one — but TWO — of their top 10 most-cited scientific papers. These papers were the result of FORWARD data. During this 45-minute Lunch & Learn webinar, Dr. Elizabeth Berry-Kravis and Dr. Walter Kaufmann presented these two “most-cited” publications and answered questions during a moderated Q&A.
Sleep problems can be hard on the entire family and can impact behavior. This session discusses common sleep problems and some strategies for treating them in children with FXS, including assessments, behavioral techniques, and medications commonly used to treat sleep problems.