Webinars & Videos
Featured
This series of on-demand videos helps anyone seeking a clearer understanding of Fragile X syndrome and the Fragile X premutation.
Latest
Through personal stories, this Keynote panel of speakers delves into the boundless potential and opportunities realized by those living with Fragile X. Learn how individuals and families have navigated challenges, uncovered strengths, and forged inspiring pathways and connections.
Experts discuss the unique health, wellness, puberty, and fertility considerations for girls and women with Fragile X syndrome (FXS), including how needs can vary widely across individuals. Panelists discuss guidance on puberty conversations, reproductive healthcare, emotional wellness, sleep, exercise, and supporting independence.
All Webinars and Videos
This series of on-demand videos helps anyone seeking a clearer understanding of Fragile X syndrome and the Fragile X premutation.
The multidisciplinary panel discussed the unique experiences and support needs of females living with Fragile X syndrome. While females may sometimes exhibit fewer overt support needs, they can be as significantly affected as males. This complexity highlights the necessity for individualized approaches to support and intervention.
Recently, the American Journal of Medical Genetics Part A congratulated Fragile X researchers for authoring not one — but TWO — of their top 10 most-cited scientific papers. These papers were the result of FORWARD data. During this 45-minute Lunch & Learn webinar, Dr. Elizabeth Berry-Kravis and Dr. Walter Kaufmann presented these two “most-cited” publications and answered questions during a moderated Q&A.
This family-friendly introductory session unpacks the complexities of assistive technology from early childhood to special education IEPs through to adulthood. Families will learn about no-to-high-tech assistive technology with examples and how it works.
Anne Hoffmann and Kristen Vincent present tools that caregivers can use to encourage communication development for children during their early stages of development.
Speech-language pathologists Anne Hoffmann and Kristen Vincent focus on developing language past the one-phrase level. Learn strategies to encourage the production and comprehension of more complex language, such as longer descriptive phrases, multi-clause phrases, more challenging vocabulary, and tools to help in home and classroom settings.
Learn about ways to support growth in toilet readiness skills. This workshop provides you with specialized information about modifications that may make toilet training more successful based on the neurobiology of FXS and data from other families from the FORWARD project.
Dr. Jennifer Epstein reviews toilet strategies for use with older individuals (age 10 through adulthood).
Topics covered include considerations to take into account when looking into post-secondary education options, resources to help prepare for puberty, strategies (with examples) on how to support task initiation and completion, and backward and forward chaining and transitions.
In this presentation, hear an overview of how the Early Check team is integrating telehealth models in order to provide families with the necessary information, support, surveillance, and intervention.