Webinars & Videos
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In the first webinar of NFXF’s 2026 Webinar Series, we hear updates from each of the current NIH-funded Fragile X Centers of Excellence. This funding remains critical to sustaining progress and advancing future discoveries.
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Guidelines with relevant resources for families with young children with FXS that are aligned with national early childhood special education and early intervention best practices.
Lauren Moskowitz covers how to assess the functions of challenging behavior (why the behavior is occurring) by first identifying the antecedents that “trigger” it and the consequences that follow it.
All Webinars and Videos
Guidelines with relevant resources for families with young children with FXS that are aligned with national early childhood special education and early intervention best practices.
Lauren Moskowitz covers how to assess the functions of challenging behavior (why the behavior is occurring) by first identifying the antecedents that “trigger” it and the consequences that follow it.
Anne Hoffmann and Kristen Vincent present tools that caregivers can use to encourage communication development for children during their early stages of development.
The treatment of Fragile X syndrome can be complex, and many families benefit from receiving care from a multidisciplinary team. But what is a multidisciplinary team? A multidisciplinary team is a unit of professionals who specialize in different fields and work together toward a common goal.
During this Multidisciplinary Treatment of Fragile X Syndrome one-hour webinar, the panelists discussed the benefits of a multidisciplinary team, and the ways various professionals collaborate to effectively support and treat individuals with Fragile X syndrome.
Ilana Garber, a Fragile X carrier and mother of a child with Fragile X syndrome, shares her experience with Fragile X and offers her perspective to people interested in testing for themselves or their child. She covers Fragile X-associated primary ovarian insufficiency (FXPOI), learning from the internet, finding community, and what she wished she would have known when her son was diagnosed.
Experts in the field discuss support and solutions for females with Fragile X in this panel discussion and Q&A.
Individuals with Fragile X syndrome (FXS) can experience a variety of symptoms and behavioral challenges that change across development. This presentation highlights how to recognize behavioral challenges in FXS and the most common behavioral difficulties and treatment options at each developmental stage. Specific tips are shared that families can easily implement with their children or adolescents.
Calling all fathers, papas, daddies, pop, and dads—Will Bridges discusses raising a child or children with Fragile X syndrome. Not sure how to explain Fragile X syndrome to a colleague? We’ve got you covered. Do you find yourself frustrated at home? We all do, and we have some ideas that may help.
This presentation focuses on signs of emotion dysregulation in Fragile X syndrome and ways to respond including practical strategies and an Emotion Regulation Toolkit to download.
This presentation focuses on tools that caregivers can use to encourage communication development for individuals at early stages of development. In particular, evidence-based caregiver-responsivity techniques can be implemented within already existing family routines.