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This series of on-demand videos helps anyone seeking a clearer understanding of Fragile X syndrome and the Fragile X premutation.
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Through personal stories, this Keynote panel of speakers delves into the boundless potential and opportunities realized by those living with Fragile X. Learn how individuals and families have navigated challenges, uncovered strengths, and forged inspiring pathways and connections.
Experts discuss the unique health, wellness, puberty, and fertility considerations for girls and women with Fragile X syndrome (FXS), including how needs can vary widely across individuals. Panelists discuss guidance on puberty conversations, reproductive healthcare, emotional wellness, sleep, exercise, and supporting independence.
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Through personal stories, this Keynote panel of speakers delves into the boundless potential and opportunities realized by those living with Fragile X. Learn how individuals and families have navigated challenges, uncovered strengths, and forged inspiring pathways and connections.
Guidelines with relevant resources for families with young children with FXS that are aligned with national early childhood special education and early intervention best practices.
Lauren Moskowitz covers how to assess the functions of challenging behavior (why the behavior is occurring) by first identifying the antecedents that “trigger” it and the consequences that follow it.
Anne Hoffmann and Kristen Vincent present tools that caregivers can use to encourage communication development for children during their early stages of development.
The treatment of Fragile X syndrome can be complex, and many families benefit from receiving care from a multidisciplinary team. But what is a multidisciplinary team? A multidisciplinary team is a unit of professionals who specialize in different fields and work together toward a common goal.
During this Multidisciplinary Treatment of Fragile X Syndrome one-hour webinar, the panelists discussed the benefits of a multidisciplinary team, and the ways various professionals collaborate to effectively support and treat individuals with Fragile X syndrome.
Ilana Garber, a Fragile X carrier and mother of a child with Fragile X syndrome, shares her experience with Fragile X and offers her perspective to people interested in testing for themselves or their child. She covers Fragile X-associated primary ovarian insufficiency (FXPOI), learning from the internet, finding community, and what she wished she would have known when her son was diagnosed.
Experts in the field discuss support and solutions for females with Fragile X in this panel discussion and Q&A.
Presenter Debra Reisinger highlights how to recognize behavioral challenges in FXS, the most common behavioral difficulties, and treatment options.
Calling all fathers, papas, daddies, pop, and dads—Will Bridges discusses raising a child or children with Fragile X syndrome. Not sure how to explain Fragile X syndrome to a colleague? We’ve got you covered. Do you find yourself frustrated at home? We all do, and we have some ideas that may help.
This presentation focuses on signs of emotion dysregulation in Fragile X syndrome and ways to respond including practical strategies and an Emotion Regulation Toolkit to download.