Webinars & Videos

Experts discuss the unique health, wellness, puberty, and fertility considerations for girls and women with Fragile X syndrome (FXS), including how needs can vary widely across individuals. Panelists discuss guidance on puberty conversations, reproductive healthcare, emotional wellness, sleep, exercise, and supporting independence.

The multidisciplinary panel discussed the unique experiences and support needs of females living with Fragile X syndrome. While females may sometimes exhibit fewer overt support needs, they can be as significantly affected as males. This complexity highlights the necessity for individualized approaches to support and intervention.

Reproductive health is a broad topic, covering the physical and emotional components of areas like puberty, sexuality, reproductive options, and family planning. These topics can be challenging to cover, but they are important!

Topics covered include considerations to take into account when looking into post-secondary education options, resources to help prepare for puberty, strategies (with examples) on how to support task initiation and completion, and backward and forward chaining and transitions.

This session discusses specific challenges that arise during puberty and adolescence while also providing youth and their caregivers with some strategies and resources to assist in navigating the teenage years.

Dr. Marcia Braden presents a webinar about females and Fragile X syndrome. Whether you are a parent of a female with FXS, an adult female with FXS, or a professional working with females, this webinar will help you better understand the features associated with the syndrome. Information processing, cognitive strengths and weaknesses, and social issues are also discussed, including strategies to address each.