Webinars & Videos

Whether this is your first NFXF International Fragile X Conference or you are a seasoned conference attendee looking for a refresher, these foundational videos are for you.

Experts discuss the unique health, wellness, puberty, and fertility considerations for girls and women with Fragile X syndrome (FXS), including how needs can vary widely across individuals. Panelists discuss guidance on puberty conversations, reproductive healthcare, emotional wellness, sleep, exercise, and supporting independence.

Lauren Moskowitz covers how to assess the functions of challenging behavior (why the behavior is occurring) by first identifying the antecedents that “trigger” it and the consequences that follow it.

This session reviews features of attention problems, hyperactivity, and impulsivity in FXS and reviews previous studies of ADHD in Fragile X.

La Dra. Bibiana Restrepo, un pediatra del desarrollo conductual certificado por la junta de la Universidad de California y el Instituto MIND, se reúne con Johana Latorre, Lorena Reisenauer, Luz Elena Paez y Paula Bahlcke en una discusión sobre las características conductuales en el SXF.

Rebecca Shaffer leads two presentations about how to stay calm and manage intense emotions. The first is for self-advocates, and the second is for caregivers of individuals with Fragile X syndrome.

Insights from different perspectives and exploring the role that parents and caregivers could play in preventing these behaviors, reducing their intensity, or, unintentionally, contributing to them.

The multidisciplinary panel discussed the unique experiences and support needs of females living with Fragile X syndrome. While females may sometimes exhibit fewer overt support needs, they can be as significantly affected as males. This complexity highlights the necessity for individualized approaches to support and intervention.

This family-friendly introductory session unpacks the complexities of assistive technology from early childhood to special education IEPs through to adulthood. Families will learn about no-to-high-tech assistive technology with examples and how it works.

Reproductive health is a broad topic, covering the physical and emotional components of areas like puberty, sexuality, reproductive options, and family planning. These topics can be challenging to cover, but they are important!