Webinars & Videos
Featured
In the first webinar of NFXF’s 2026 Webinar Series, we hear updates from each of the current NIH-funded Fragile X Centers of Excellence. This funding remains critical to sustaining progress and advancing future discoveries.
Latest
Guidelines with relevant resources for families with young children with FXS that are aligned with national early childhood special education and early intervention best practices.
Lauren Moskowitz covers how to assess the functions of challenging behavior (why the behavior is occurring) by first identifying the antecedents that “trigger” it and the consequences that follow it.
All Webinars and Videos
Lauren Moskowitz covers how to assess the functions of challenging behavior (why the behavior is occurring) by first identifying the antecedents that “trigger” it and the consequences that follow it.
This session reviews features of attention problems, hyperactivity, and impulsivity in FXS and reviews previous studies of ADHD in Fragile X.
La Dra. Bibiana Restrepo, un pediatra del desarrollo conductual certificado por la junta de la Universidad de California y el Instituto MIND, se reúne con Johana Latorre, Lorena Reisenauer, Luz Elena Paez y Paula Bahlcke en una discusión sobre las características conductuales en el SXF.
Rebecca Shaffer leads two presentations about how to stay calm and manage intense emotions. The first is for self-advocates, and the second is for caregivers of individuals with Fragile X syndrome.
Insights from different perspectives and exploring the role that parents and caregivers could play in preventing these behaviors, reducing their intensity, or, unintentionally, contributing to them.
The multidisciplinary panel discussed the unique experiences and support needs of females living with Fragile X syndrome. While females may sometimes exhibit fewer overt support needs, they can be as significantly affected as males. This complexity highlights the necessity for individualized approaches to support and intervention.
This family-friendly introductory session unpacks the complexities of assistive technology from early childhood to special education IEPs through to adulthood. Families will learn about no-to-high-tech assistive technology with examples and how it works.
Reproductive health is a broad topic, covering the physical and emotional components of areas like puberty, sexuality, reproductive options, and family planning. These topics can be challenging to cover, but they are important!
Topics covered include considerations to take into account when looking into post-secondary education options, resources to help prepare for puberty, strategies (with examples) on how to support task initiation and completion, and backward and forward chaining and transitions.
Our panel of experts, Rebecca Shaffer, Lauren Schmitt, Tracy Murnan Stackhouse, Elizabeth M. Berry-Kravis, and Randi J. Hagerman, discuss behavior.