National Fragile X Foundation launches NFXF Biobank™ in support of its NFXF Collaborative Biomarker Research Program, accelerating research into Fragile X treatments and cures.
The National Fragile X Foundation (NFXF) announces the launch of the NFXF Biobank™, the first major project of the NFXF Collaborative Biomarker Research (CBR) Program. The program is designed to drive faster and more cost-effective research into treatments and eventual cures for the family of Fragile X (FX) disorders.
Select Fragile X Clinics throughout the USA collect and ship the biological samples of volunteer participants from the FX community. The de-identified samples are received, processed, characterized, and stored in the newly formed NFXF Biobank™ at UC Davis MIND. De-identified clinical data from these same participants, in combination with their biological materials, create unique NFXF Research Ready Materials™.
The initial goal is to have 30 participants at each clinic for a total of 90 participants per year. The NFXF plans to raise money in the short term to expand the program to include more participants and clinics. This is an incredibly exciting milestone for the entire Fragile X community, and with your financial support we can accelerate the development of effective treatments and a cure for Fragile X.