(Berlin/Sacramento) The International Fragile X Alliance (IFXA), a global network of Fragile X parent support organizations, was launched on February 29, 2016. IFXA will work to improve the life situation of people with the most common inherited form of intellectual disability, Fragile X Syndrome, as well as other Fragile X-associated Disorders. Members of the Alliance will share experiences, knowledge and content with one another in service to the worldwide Fragile X community. The Alliance launched with 28 Fragile X parent support organizations from 24 countries on five continents. IFXA will also help to form new organizations in those countries where little or no support exists for families.
Please see www.ifxa.net for more information.