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26 10, 2014

Fragile X Syndrome: NIH Research Study

By |2014-10-26T12:23:56-04:00Oct 26, 2014|Opportunities for Families|Comments Off on Fragile X Syndrome: NIH Research Study

NIMH This research seeks to understand how protein formation in the brain is affected in Fragile X syndrome (FXS). Researchers will measure the rate at which the brain makes proteins (protein synthesis) and will [...]

23 09, 2014

NIH awards $35 Million for Fragile X Research

By |2014-09-23T16:26:26-04:00Sep 23, 2014|2014, Advocacy, In the News|Comments Off on NIH awards $35 Million for Fragile X Research

Three research teams receive funding over next five years The National Institutes of Health (NIH) is making funding awards of $35 million over the next five years to support the Centers for Collaborative Research in [...]

31 07, 2013

NIH Launches Neurological Drug Development Projects Including Fragile X Syndrome

By |2013-07-31T10:32:38-04:00Jul 31, 2013|News Reports and Commentaries|Comments Off on NIH Launches Neurological Drug Development Projects Including Fragile X Syndrome

The National Institutes of Health (NIH) has launched three projects that will focus on development of therapeutics, including one project for Fragile X syndrome. "We are excited about the opportunity to apply cutting-edge science to [...]

15 05, 2012

National Institutes of Health (NIH) Research Plan for FXS and Associated Disorders Meeting

By |2012-05-15T09:50:01-04:00May 15, 2012|Keeping You Informed|Comments Off on National Institutes of Health (NIH) Research Plan for FXS and Associated Disorders Meeting

NFXF Executive Director Robert Miller, parent and NFXF Director of Public Policy and Government Affairs Jeffrey Cohen and parent Tamaro Hudson just returned from a two-day meeting in Washington, DC where they helped update the [...]

21 07, 2009

NIH Issues Research Plan on Fragile X Syndrome and Associated Disorders

By |2009-07-21T10:55:56-04:00Jul 21, 2009|News Reports and Commentaries|Comments Off on NIH Issues Research Plan on Fragile X Syndrome and Associated Disorders

The National Institutes of Health has developed a research plan to advance the understanding of Fragile X syndrome and its associated conditions, Fragile X-associated tremor/ataxia syndrome and Fragile X-associated primary ovarian insufficiency. Fragile X syndrome [...]

24 01, 2024

The National Fragile X Foundation — 1984: The Beginning

By |2024-01-24T12:55:57-05:00Jan 24, 2024|Foundation|Comments Off on The National Fragile X Foundation — 1984: The Beginning

At the beginning of the 1980s, a young developmental pediatrician, Dr. Randi Hagerman, was building a career at Children’s Hospital Colorado. Her curiosity led her to some of the early papers on X-linked intellectual disabilities (in particular, those of Dr. Gillian Turner from Australia) and descriptions of what was still often referred to as Martin-Bell Syndrome.

6 12, 2023

Dentistry for Individuals with Intellectual Disability

By |2023-12-06T11:09:32-05:00Dec 6, 2023|Blog|Comments Off on Dentistry for Individuals with Intellectual Disability

Many families struggle with helping their loved ones with intellectual and developmental disabilities maintain good oral hygiene. We've pulled together some helpful resources on dentistry for families and medical professionals.

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